California

CALIFORNIA 2019 STATE POLICY PRIORITIES

Increase Public Awareness, Early Detection And Diagnosis

Support AB 388 - It's a #KNOWBrainer

Invest $10 million to adopt the CDC's Healthy Brain Initiative in California. It's time to take BOLD action to build the state and local public health infrastructure to increase awareness, improve outcomes, plan for an aging population and prepare communities to respond to the Alzheimer's crisis. The Alzheimer's Association supports the introduction of Assembly Bill 388, requiring the California State Department of Health to implement the action agenda items in the Healthy Brain Initiative and coordinate a statewide public awareness campaign to educate the public on the sign’s and symptoms of Alzheimer’s disease and other dementias and to reach consumers at risk of cognitive impairment, with targeted outreach to populations at greater risk of developing Alzheimer’s disease and other dementias. The bill will, upon appropriation by the Legislature, require the department to establish a pilot program in up to 8 counties, and award participating counties one-time grant funding over 3 consecutive fiscal years, to develop local initiatives that are consistent with the Healthy Brain Initiative.

Increase Public Awareness, Early Detection And Diagnosis

Empower Consumers to Take Charge of Their Cognitive Health

Less than half of Californians affected by Alzheimer's have been diagnosed by a doctor and even fewer have been told of their diagnosis. To address this health disparity, the public needs to know the common signs and symptoms of Alzheimer's disease in order to access community and clinical supports. Public Health is well positioned to reach individuals and families impacted by Alzheimer's with culturally competent health information.

Increase Public Awareness, Early Detection And Diagnosis

Collect and Use Data to Drive Service Delivery

California's experience with Alzheimer's disease must be captured in national data sets, including the CDC's Behavioral Risk Factor Surveillance System survey (BRFSS). In 2020, the California Department of Public Health has the opportunity to survey Californians as young as age 45 on their cognition concerns in order to plan programs and services to meet statewide needs.



California State Plan Overview

In 2008, the California Legislature passed Senate Bill 491 calling for the development of a state plan. Under the direction of the California Alzheimer's Disease and Related Disorders Advisory Committee, established within the California Health and Human Services Agency, a task force was created including representatives from state agencies, community organizations, under-represented communities, and academia as well as health care providers, caregivers, and individuals living with the disease. After incorporating public feedback to address California's culturally diverse population, the Task Force published California's State Plan for Alzheimer's Disease: An Action Plan for 2011-2021 in early 2011.



ADVOCACY EVENTS

California State Advocacy Day

February 05, 2019

Advocates from across the state will meet with newly elected Governor Gavin Newsom and state legislators to urge lawmakers to invest $10 million to adopt the CDC's Healthy Brain Initiative in California. A bold new public health approach is needed to increase awareness, improve outcomes, plan for an aging population and prepare communities to respond to the Alzheimer's crisis. State Senator Ben Hueso (D-San Diego) and Assemblymember Ash Kalra (D-San Jose) will be honored as Alzheimer's Association Legislators of the Year.


2020 Advocacy Forum

March 22-24, 2020 alz.org/forum

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.


Sign Up to Learn More About Advocacy Opportunities in California


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Jared Giarrusso | 19164472731 | [email protected]



Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.



Alzheimer's Facts and Figures in California

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 100,000 280,000 280,000 670,000
2025 120,000 380,000 330,000 840,000

Percentage change from 2019

Medicaid

$3.925

BILLION

Medicaid costs of caring for people with Alzheimer's (2019)

32.0%

change in costs from 2019 to 2025


Medicare

$30,665

per capita Medicare spending on people with dementia (in 2018 dollars)


HOSPICE (2016)

27,436

#

of people in hospice have a primary diagnosis of dementia


20%

of people in hospice with a primary diagnosis of dementia

Hospitals (2015)

1,428

#

of emergency department visits per 1,000 people with dementia


21.7%

dementia patient hospital readmission rate

Caregiving

1,621,000

Number of Caregivers

1,846,000,000

Total Hours of Unpaid Care

$23,337,000,000

Total Value of Unpaid Care

$1,109,000,000

Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)

16,238

3rd leading cause of death in California
268% increase in Alzheimer's deaths since 2000

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at alz.org/facts.


U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.



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