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California recently completed two efforts toward improving how the state addresses Alzheimer’s. The California’s Governor’s Task Force on Alzheimer’s Prevention, Preparedness and the Path Forward, chaired by former California First Lady Maria Shriver, presented recommendations to Governor Gavin Newsom in late 2020. The Task Force was charged with examining how Alzheimer’s disease disproportionately impacts women and people of color, and identifying the unique opportunities that California brings through its diverse populations and universities to research and develop solutions to address those underrepresented communities. Recommendations include appointing a senior advisor to coordinate all Alzheimer’s-related agency efforts; establishing an Alzheimer’s Disease public awareness campaign to educate the public about dementia, prevention, symptoms, diagnosis and treatments; and developing a statewide standard of care to standardize how healthcare practitioners identify, screen and diagnose for dementia. The full report is available on the task force website.
In early 2021, Governor Gavin Newsom and the Administration released a 10-year blueprint to guide planning, investment and action on behalf of people with disabilities and older adults, including the 2.3 million Californians currently impacted by Alzheimer’s and all dementia. Working alongside consumers and providers, the Alzheimer’s Association advocated for key recommendations in the Master Plan for Aging to prepare California for a staggering 22 percent increase in the population affected by 2025. The Master Plan for Aging integrates the work of the Governor’s Alzheimer’s Prevention and Preparedness Task Force.
The Alzheimer's Association was represented on both task forces by Susan DeMarois, Director of Public Policy for the Alzheimer's Association's California chapters.
Equip Physicians with Dementia-Training to Increase Timely Diagnosis and Improve Care
Approximately 50% of people living with Alzheimer’s or other dementias never receive a formal diagnosis. This limits their ability to engage in care planning and access available resources. Physicians and other medical professionals are on the front lines in addressing this critical issue, but we must ensure they have the training they need to make a diagnosis or referral to best serve their patient. The Alzheimer’s Association is calling on state legislators to support Senate Bill 48 to establish dementia training standards for physicians, physician assistants and social workers. With this change, more Californians with memory issues can be appropriately screened for cognitive impairment. 690,000 individuals are living with Alzheimer's in California today, and yet less than half of them have been given a diagnosis. Too often we hear the story of individuals who waited one, five, even ten years to receive a diagnosis, and how that delay impacted individual's quality of life. He
California State Plan Overview
In 2008, the California Legislature passed Senate Bill 491 calling for the development of a state plan. Under the direction of the California Alzheimer's Disease and Related Disorders Advisory Committee, established within the California Health and Human Services Agency, a task force was created including representatives from state agencies, community organizations, under-represented communities, and academia as well as health care providers, caregivers, and individuals living with the disease. After incorporating public feedback to address California's culturally diverse population, the Task Force published California's State Plan for Alzheimer's Disease: An Action Plan for 2011-2021 in early 2011.
California State Advocacy Day
March 04, 2021
This year our California State Advocacy Day is everywhere! Please join us on March 4th and 5th, 2021, as we advocate with our state legislators. While advocacy day, and our state legislature may look different this year, our determination to make a difference will always be the same. Register for more information and to join the fight to ensure everyone in California living with Alzheimer’s or dementia can receive a timely diagnosis.
Sign Up to Learn More About Advocacy Opportunities in California
State Affairs Contact Jared Giarrusso | 916-447-2731 | [email protected]
Number of People Aged 65 and Older With Alzheimer's by Age
Percentage change from 2020
Medicaid costs of caring for people with Alzheimer's (2020)
change in costs from 2020 to 2025
per capita Medicare spending on people with dementia (in 2019 dollars)
of people in hospice have a primary diagnosis of dementia
of people in hospice with a primary diagnosis of dementia
of emergency department visits per 1,000 people with dementia
dementia patient hospital readmission rate
increase in emergency deparment visits since 2007
Number of Caregivers
Total Hours of Unpaid Care
Total Value of Unpaid Care
|16,627||total deaths in California|
|3rd||leading cause of death in California|
|276%||increase in Alzheimer's deaths since 2000|
For more information, view the 2020 Alzheimer's Disease Facts and Figures report at alz.org/facts.
Over 5 million Americans are living with Alzheimer's, and as many as 13.8 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $305 billion in 2020, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly 1 in 3 seniors who dies each year has Alzheimer's or another dementia.