Support Dementia Caregivers by Increasing the Alzheimer’s Respite Care Program

Over 142,000 Connecticut residents are providing unpaid care to loved ones with Alzheimer’s or another form of dementia, thus enabling a large portion of the 80,000 people living with dementia in Connecticut to live in the community, instead of moving into more costly residential long-term care. The Alzheimer's Respite Care program provides critical funding to caregivers supporting their loved ones at home. With the growing numbers of people in Connecticut living with Alzheimer's, the Alzheimer’s Association urges state lawmakers to add one million dollars in additional funding to help support the needs of families providing care.

Establish a Dementia Coordinator Position in Connecticut

Today, numerous Connecticut agencies administer a variety of programs critical to people living with dementia. However, these efforts are often siloed, with multiple state agencies working separately from one another. As a result, the state does not have a clear response to how it is addressing Alzheimer’s. It is essential that Connecticut establish and fund a full-time Dementia Coordinator Position to coordinate programs and services, ensure implementation and updates to the Alzheimer’s State Plan and improve data collection and utilization. We are calling on the legislature to approve legislation establishing this position.

Connecticut State Plan Overview

In 2013, Connecticut's legislature passed Special Act 13-11, creating the state's Task Force on Alzheimer's Disease and Dementia. The Task Force met six times between September and December of 2013 and published a list of recommendations in December 2013 in the Report of the Task Force on Alzheimer's Disease and Dementia. The state plan focuses on short-term goals meant be completed over the course of three to five years. In January 2020, the Task Force published an update to the state plan, focusing on progress made, updating recommendations, and expanding the role for the Connecticut Department of Public Health.


Connecticut State Advocacy Day

March 30, 2022

Join fellow Alzheimer’s advocates for an exciting day of advocacy on March 30, 2022 turning Connecticut purple! This virtual event will feature an informative and engaging program urging state legislators to support ongoing dementia-related legislation benefiting those living with dementia and their caregivers. Never advocated before? No problem! We’ll train you and there will be plenty of opportunity to ask questions before meeting with state officials.

Sign Up to Learn More About Advocacy Opportunities in Connecticut

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State Affairs Contact Christianne Kovel | 8609138279 [email protected]

Alzheimer's Facts and Figures in Connecticut

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


woman holding glasses


Individuals living with Alzheimer's in Connecticut

This number is projected to increase 13.8% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.



Deaths from Alzheimer's in Connecticut in 2019

couple hugging on bench

Alzheimer's is the 6th leading cause of death in Connecticut.

There were 382 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 12% higher than average.


caregiver hugging

Value of unpaid care work

Hours of unpaid care

Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In Connecticut, there are 143,000 dementia caregivers, who each provide an average of 21 hours of unpaid care per week




per capita Medicare spending on people with dementia



Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals


# of people in hospice with a primary diagonsis of dementia


# of emergency department visits per 1,000 people with dementia

People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.

The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit to view the full report.