Delaware

DELAWARE 2020 STATE POLICY PRIORITIES

Increase Public Awareness, Early Detection And Diagnosis

Increasing Public Awareness of Alzheimer’s – Early Detection and Diagnosis

Early detection allows for the best opportunity to receive better medical care, enhance health outcomes, plan for future needs, and secure medical desires and wishes. Even without a way to cure or slow the progression of Alzheimer’s, early detection allows individuals and their caregivers greater access to available treatments and support services, as well as the opportunity to enroll in clinical trials. We support an appropriation by the Delaware legislature that will establish and Alzheimer’s and dementia public health campaign in partnership with community groups and consistent with the Centers for Disease Control and Prevention’s “Healthy Brain Initiative, which established a nationwide framework for addressing Alzheimer’s disease and other dementias.

Build a Dementia-Capable Workforce

Dementia Training for First Responders

Law enforcement and first responders are critical to the health and safety of people living with Alzheimer’s disease. First responders frequently interact with individuals who have dementia in a variety of settings and are among the first to observe instances of abuse and neglect. Without proper training on the unique needs of people with dementia, situations may escalate quickly with potentially dangerous consequences. We support forthcoming legislation in Delaware that will require training for law enforcement and first responders that would educate these professionals on understanding specific behavior symptoms, effective communication strategies, protocols for contacting caregivers and available local resources.



Delaware State Plan Overview

In early 2012 the Alzheimer's Association Delaware Valley Chapter coordinated a meeting with Governor Jack Markell, Secretary of the Department of Health and Social Services Rita Landgraf, and Director of the Division of Services for Aging and Adults with Physical Disabilities (DSAAPD) Bill Love. During the meeting, there was a consensus about the importance of mapping out a strategy to address Alzheimer's disease in Delaware, and a decision was made to begin working on the development of an Alzheimer's state plan. The Alzheimer's Association and DSAAPD established a Task Force, comprised of caregivers, advocates, and professionals representing a broad range of organizations. With support from DSAAPD staff, the Task Force published the Delaware State Plan to Address Alzheimer's Disease and Related Disorders in December 2013. 



ADVOCACY EVENTS

Delaware State Advocacy Day

June 03, 2020

The Alzheimer’s State Advocacy Day at Delaware’s Legislative Hall will bring together advocates from across the state in an inspiring day of action. Enjoy breakfast with us, learn about our policy priorities in the First State, discuss solutions to the issues facing Delawareans living with Alzheimer’s and their families, and share your story and key policy asks with state legislators.


2020 Advocacy Forum

March 22-24, 2020 alz.org/forum

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.


Sign Up to Learn More About Advocacy Opportunities in Delaware


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Katie Macklin | 2153999204 | [email protected]



Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.



Alzheimer's Facts and Figures in Delaware

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 3,200 8,300 7,100 19,000
2025 3,900 11,000 8,200 23,000

Percentage change from 2019

Medicaid

$238

MILLION

Medicaid costs of caring for people with Alzheimer's (2019)

29.7%

change in costs from 2019 to 2025


Medicare

$28,522

per capita Medicare spending on people with dementia (in 2018 dollars)


HOSPICE (2016)

667

#

of people in hospice have a primary diagnosis of dementia


12%

of people in hospice with a primary diagnosis of dementia

Hospitals (2015)

1,576

#

of emergency department visits per 1,000 people with dementia


20.7%

dementia patient hospital readmission rate

Caregiving

55,000

Number of Caregivers

62,000,000

Total Hours of Unpaid Care

$786,000,000

Total Value of Unpaid Care

$50,000,000

Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)

377

6th leading cause of death in Delaware
243% increase in Alzheimer's deaths since 2000

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at alz.org/facts.


U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.



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