Delaware

DELAWARE 2022 STATE POLICY PRIORITIES

Drive Public Awareness of Risk Reduction

Age is the greatest risk for Alzheimer's and other dementias; with a growing population of 65+ Delawareans, there is a significant need to increase public awareness and understanding of cognitive decline as part of health promotion. The evidence is now sufficiently established that there are ways to reduce the risk of cognitive decline. This evidence establishes a scientific base so that the public health community can promote brain health across the lifespan. The Alzheimer's Association supports forthcoming legislation that will require the Division of Public Health to incorporate evidence-based risk reduction/brain health messaging, consistent with the Centers for Disease Control and Prevention’s “Healthy Brain Initiative,” into existing public health campaigns.

Update the Delaware State Alzheimer’s Plan

Today, numerous Delaware state agencies administer a variety of programs critical to people living with dementia, including Medicaid, adult protective services, and health professional and facility licensure. However, these efforts are often siloed, with multiple state agencies working separately from one another. Although Delaware has a state plan to address Alzheimer’s, it was completed in 2013, and much has changed in terms of the dementia landscape since then. Delaware needs an updated State Alzheimer’s Plan bringing all of the key state officials and private-sector stakeholders together to outline a comprehensive and coordinated approach to addressing Alzheimer’s. The Alzheimer’s Association will urge the Governor and Secretary of the Department of Health and Social Services to reignite a State Plan Task Force, supported by and working in coordination with the state’s first ever dementia coordinator staff position, as a first step in developing a new Plan.

Support Dementia Caregivers by Expanding Access to Respite Care

Nearly 50,000 Delawareans are providing unpaid care to loved ones with Alzheimer’s or another form of dementia thus enabling a large portion of the 20,000 people living with dementia in Delaware to live in the community, instead of moving into more costly residential long-term care. Respite care provides a much-needed break for family caregivers. In cases where individual financial resources are insufficient, Delaware’s current Respite Care Program steps in with limited but critical support. The Program funds can help provide occasional adult day care services or a personal care aide in the home a few times per month. This allows the family caregiver to take care of their personal medical issues, complete tasks outside of the home, or simply enjoy time off from the demands of caregiving. These funds are limited however, and the program is not dementia-specific. To serve the growing number of family caregivers, it is critical that legislators increase funding to the current program.

Equip Delaware with a Dementia Capable Workforce

Individuals with Alzheimer’s and other dementia have unique needs that often make care delivery, communication and interaction more challenging and demanding. Direct care workers in long-term care settings, in-home services and adult day settings often do not have sufficient dementia-specific knowledge to effectively support those living with the disease. At the same time, adult protective services workers, law enforcement and first responders are among the first to be contacted and interact in situations of emergencies, abuse, neglect and financial exploitation. We will educate Delaware lawmakers and other key decision-makers on the importance of a dementia-capable workforce and advocate for legislative and regulatory changes that bolster recruitment, increase retention and enhance competency-based dementia training requirements of all direct care workers.



Delaware State Plan Overview

In early 2012 the Alzheimer's Association Delaware Valley Chapter coordinated a meeting with Governor Jack Markell, Secretary of the Department of Health and Social Services Rita Landgraf, and Director of the Division of Services for Aging and Adults with Physical Disabilities (DSAAPD) Bill Love. During the meeting, there was a consensus about the importance of mapping out a strategy to address Alzheimer's disease in Delaware, and a decision was made to begin working on the development of an Alzheimer's state plan. The Alzheimer's Association and DSAAPD established a Task Force, comprised of caregivers, advocates, and professionals representing a broad range of organizations. With support from DSAAPD staff, the Task Force published the Delaware State Plan to Address Alzheimer's Disease and Related Disorders in December 2013. Since the release of the Delaware State Plan, an Advisory Committee made up of a variety of stakeholders from the Alzheimer’s community, has been meeting to oversee the Plan’s implementation.



ADVOCACY EVENTS

Delaware State Advocacy Day

June 09, 2022

Help bring awareness of the impact Alzheimer’s and dementia has on tens of thousands of Delawareans to the Delaware General Assembly! Join fellow Alzheimer’s advocates in the state capital on Thursday, June 9th to rally state lawmakers to equip Delaware with a dementia capable workforce and increase support for caregivers through expanded dementia-specific respite. Never advocated before? No problem! We’ll train you and there will be plenty of opportunity to ask questions before meeting with state officials. We will host a training session in the week leading up to the event to make sure all your questions are answered. By lending your voice, you can make a difference in influencing change for Delaware’s Alzheimer’s.


Sign Up to Learn More About Advocacy Opportunities in Delaware


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Katie Macklin | 3025842552 [email protected]



Alzheimer's Facts and Figures in Delaware

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


Prevalence



woman holding glasses

19,000

Individuals living with Alzheimer's in Delaware


This number is projected to increase 21.1% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.

Mortality


339

Deaths from Alzheimer's in Delaware in 2019

couple hugging on bench

There has been a 208% increase in Alzheimer's deaths since 2000. Alzheimer's is the 6th leading cause of death in Delaware.

There were 112 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 14% higher than average.


Caregiving



caregiver hugging

Value of unpaid care work

Hours of unpaid care


Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In Delaware, there are 47,000 dementia caregivers, who each provide an average of 28 hours of unpaid care per week

Costs

Medicare

$29,193

per capita Medicare spending on people with dementia

Medicaid

$253,000,000

Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals



716

# of people in hospice with a primary diagonsis of dementia


1,578

# of emergency department visits per 1,000 people with dementia


People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.


The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.