Increase Public Awareness, Early Detection And Diagnosis

Support caregivers' ability to assist loved ones

For many, caregiving responsibilities include complex care responsibilities like medication management, nursing tasks, planning diets, setting appointments, and more. By providing this care, family caregivers serve a critical role in helping their loved ones live independently at home, and most do so with no medical training. Support for family caregivers through discharge planning will help make balancing their big responsibilities a little bit easier. We urge our state lawmakers to pass the CARE Act (Caregiver Advise, Record, Enable) and help with the transition from the hospital to their home and, ultimately, increase the ability to manage chronic diseases and reduce the rate of hospital readmissions. The CARE Act requires hospitals to: record the name of the family caregiver on the medical record of your loved one, inform the family caregivers when their loved one is to be discharged, and provide the family caregiver with education and instruction of the medical tasks he or she will need to perform for the patient at home.

Increase Access to Home and Community-Based Services

Help Iowa's caregivers remain healthy & resilient

The HERO Project is an Iowa-based, volunteer-driven, family caregiver support and resilience program created in early 2015. Since its inception, the HERO Project has provided telephone support and respite scholarships for over 100 people and has been statistically shown to help family caregivers remain resilient by helping to maintain their stress level and by reducing the overall hospitalization rate of both the caregiver and the person with dementia. Ultimately, by supporting caregiver resilience, the HERO Project is actively working to ease the emotional burden that is placed on a family caregiver and increase their overall health and ability to care for their loved one in their own home. Without funding, the HERO Project has been unable to meet the needs of Iowans so we urge lawmakers to allocate $250,000 for respite and operational funding for the Health & Resilience Outreach (HERO) Project. A legislative appropriation will grow and sustain the HERO Project, allowing for the volunteer capacity to be expanded to better meet the caregiver support needs and for the respite scholarships to be granted to caregivers statewide.

Increase Access to Home and Community-Based Services

Assist Iowans in maintaining independence in their communities

A Home Modification Assistance Program will help low-income Iowans living with a disability caused by age, chronic disease or injury to modify their homes to increase accessibility, safety and to remain independent. Continuing to live in one's home promotes emotional wellbeing, independence and maintaining a connection to the community. It is also more cost-effective compared to institutional care; by keeping 15-24 people in their home and out of assisted living or nursing homes for a year avoids a cost of over $1 million annually. A safe living environment will allow for the individual with dementia to live in their home as long as possible and out of long-term care facilities, until their condition necessitates it. We urge our state lawmakers to pass a $1 million appropriation for the establishment of an infrastructure program to help low-income Iowans living with a disability or that are elderly to make modifications for a livable home.

Iowa State Plan Overview

In 2007, the Iowa Legislature established a task force through the enactment of Senate File 489 to assess the current and future impact of Alzheimer's disease on residents, examine the existing resource available, and develop a strategy to mobilize a state response to the growing threat of Alzheimer's disease. The task force included representatives from the long-term care industry, community organizations, and state agencies as well as state legislators, caregivers, and individuals directly impacted by Alzheimer's. After collecting testimony from advocacy groups and individuals to inform the plan's recommendations, the task force published the Final Report: Alzheimer's Disease Task Force in January 2008.


Iowa State Advocacy Day

February 05, 2019

Join us for the Alzheimer’s Day on the Hill at the Iowa State Capitol on Tuesday, February 5, 2019! Our advocates and staff will fill the Capitol with purple to make their voices heard and raise awareness on Alzheimer's! We will start the day gathering together to learn more about our current state legislative priorities, the advocacy process, and how to connect with elected officials to help improve the lives of Iowans with dementia and the loved ones that care for them. After lunch, we will chat with our state legislators and host an afternoon reception to educate legislators and the public on the Association's programs and services and ways to reduce your risk of dementia. Agenda: 10:30-11:30 - Information session/training 12:00-1:00 - Lunch with advocates/staff 1:00-2:00 - Connect with legislators 2:00-3:30 - Open house/educational event in the rotunda If you have any questions or would like to register for the event, please call 515.440.2722 or email [email protected]

2020 Advocacy Forum

March 22-24, 2020

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.

Sign Up to Learn More About Advocacy Opportunities in Iowa

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Emily Hockins | 5155129018 | [email protected]

Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.

Alzheimer's Facts and Figures in Iowa

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 8,300 26,000 31,000 65,000
2025 9,800 31,000 33,000 73,000

Percentage change from 2019




Medicaid costs of caring for people with Alzheimer's (2019)


change in costs from 2019 to 2025



per capita Medicare spending on people with dementia (in 2018 dollars)

HOSPICE (2016)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia

Hospitals (2015)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate



Number of Caregivers


Total Hours of Unpaid Care


Total Value of Unpaid Care


Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)


6th leading cause of death in Iowa
7th highest Alzheimer's death rate in America

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.