Secure the Future by Implementing the State Alzheimer's Plan

Through a federal BOLD grant, the Iowa Department of Public Health has developed the Alzheimer's Disease and Related Dementias Program (ADRD). The ADRD Program has made great progress by hiring a dementia coordinator; establishing an advisory committee; developing a website; developing a landscape assessment of Alzheimer's and related dementias in Iowa; and, establishing an Alzheimer's Coalition to construct an Iowa Alzheimer's State Plan. The Alzheimer’s Association is calling on the Health and Human Services Budget Committee to allocate $75,000 to implement the Alzheimer’s State Plan and ensure that the ADRD Program can continue after the federal grant expires.

Protect People with Dementia From Abuse and Neglect, SF 522

People with Alzheimer’s and other dementias are at heightened risk for experiencing elder abuse. Older adults with dementia are especially susceptible to abuse — as many as 62% of them experience psychological abuse and as many as one-fourth have been physically abused. However, Iowa lacks a comprehensive structure to protect Iowans with dementia who are victims of abuse. The Alzheimer’s Association is calling on Iowa lawmakers to support SF 522, which will specify the penalties for elder abuse and procedures for how these cases should be prosecuted. SF 522 unanimously passed the Senate last year and was stalled in the House Judiciary Committee. Therefore, it is crucial for advocates to contact their House members and them to support this important legislation.

Eliminate the Moratorium on Training for Long-Term Care Workers

COVID-19 has scrambled training requirements for direct care workers in Iowa. In September 2021, to address the shortage of direct care workers in long-term care communities the state temporarily waived training requirements for temporary nurse aides (TNA’s) who deliver much of the hands-on care in nursing homes. It is imperative that all workers who assist individuals living with Alzheimer’s and other dementia are properly trained. The Alzheimer’s Association is urging legislators to eliminate the moratorium on training requirements for temporary nurses aids to ensure individuals living with dementia receive quality care.

Iowa State Plan Overview

In 2007, the Iowa Legislature established a task force through the enactment of Senate File 489 to assess the current and future impact of Alzheimer's disease on residents, examine the existing resource available, and develop a strategy to mobilize a state response to the growing threat of Alzheimer's disease. The task force included representatives from the long-term care industry, community organizations, and state agencies as well as state legislators, caregivers, and individuals directly impacted by Alzheimer's. After collecting testimony from advocacy groups and individuals to inform the plan's recommendations, the task force published the Final Report: Alzheimer's Disease Task Force in January 2008.


Iowa State Advocacy Day

January 31, 2022

Iowa's Advocacy Week on the Hill was held on January 31st through February 3rd and was a great success! Thank you to our advocates who participated in email campaigns, letters to the editor, and virtual meetings with legislators. We hope to see you again next year!

Sign Up to Learn More About Advocacy Opportunities in Iowa

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Robyn Mills | 515-314-3010 [email protected]

Alzheimer's Facts and Figures in Iowa

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


woman holding glasses


Individuals living with Alzheimer's in Iowa

This number is projected to increase 10.6% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.



Deaths from Alzheimer's in Iowa in 2019

couple hugging on bench

Alzheimer's is the 6th leading cause of death in Iowa.

There were 439 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 14% higher than average.


caregiver hugging

Value of unpaid care work

Hours of unpaid care

Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In Iowa, there are 73,000 dementia caregivers, who each provide an average of 16 hours of unpaid care per week




per capita Medicare spending on people with dementia



Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals


# of people in hospice with a primary diagonsis of dementia


# of emergency department visits per 1,000 people with dementia

People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.

The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit to view the full report.