Illinois

ILLINOIS 2021 STATE POLICY PRIORITIES

Equip Physicians with Dementia-Training to Improve Care

Approximately 50% of people living with Alzheimer’s or other dementias never receive a formal diagnosis. This limits their ability to engage in care planning and access available resources. Physicians are on the front lines in addressing this critical issue, but we must ensure they have the training they need to make a diagnosis or referral to best serve their patient. Thus, the Alzheimer’s Association is working in collaboration with Lt. Governor Juliana Stratton to ensure all physicians who serve adults have a basic level of training on Alzheimer’s and other dementias.

Open Our Eyes to Alzheimer’s and Dementia

Alzheimer’s is the 6th leading cause of death and most expensive disease in America. While most people are aware of steps they should take to prevent heart disease or lung cancer, Illinoisans don’t know much about brain health, or why early diagnosis of Alzheimer’s or dementia is so important. The Alzheimer’s Association is seeking leadership from our State to make Illinois dementia-capable by engaging in a comprehensive public awareness campaign that will include messages on early detection and diagnosis, access to services, and brain health and risk reduction.

Empower Adult Protective Services Workers with Dementia-Training

Adult Protective Services (APS) workers are on the front lines of protecting older adults from exploitation and harm. Many of the adults they are charged to protect are living with Alzheimer’s or dementia, and it is critical that these workers have the training to understand how to best serve this population. That’s why the Alzheimer’s Association is advocating for APS workers to be trained regarding dementia, communication with individuals, and spotting cases of abuse, neglect or financial exploitation.

Establish the No Wrong Door Task Force to Simplify Access to Dementia Services

Illinois currently administers programs which provides critical services to people living with Alzheimer’s and dementia who are unable to otherwise access care. However, these programs can be difficult/impossible to access, especially for people under 60 years old, as this population accesses services from a different state agency. The State of Illinois must explore ways to ensure services are accessible to all individuals and their caregivers. The No Wrong Door Task Force will bring all stakeholders to the table to identify solutions to remove hurdles and ensure all people can receive the care to which they are entitled.



Illinois State Plan Overview

Illinois publishes an updated Alzheimer's state plan every three years pursuant to the Alzheimer's Disease Assistance Act (410 ILCS 405). The Act charged the Illinois Department of Public Health to create an Advisory Committee comprised of persons experienced in Alzheimer's disease research, professional caregivers, members of advocacy organizations, persons living with Alzheimer's, and family members of those living with the disease. In 2012, the Act was amended to drive the next iteration of the state plan toward dementia-capability. The latest update, the Alzheimer's Disease Illinois State Plan: 2020-2023 Report and Recommendations, was completed in September 2020.



ADVOCACY EVENTS

Illinois State Advocacy Day

April 12, 2021

Join our Illinois Advocacy Week! This virtual event organizes, trains and connects Alzheimer's advocates with their state legislators, compelling our leaders to engage in the fight to make Illinois dementia capable. The week-long event will kick off on Monday evening with a virtual event and there will be multiple opportunities to virtually engage with your elected officials throughout the week!We'll bring our voices together to stand up and protect the rights of the nearly 1 million Illinois residents affected by this disease. In memory of those we've lost and in honor of those currently living with the disease, join us and help push Alzheimer's Association-backed legislation to better the lives of individuals, families, caregivers and communities in Illinois impacted by Alzheimer's disease. All you need is passion - no experience required!


Sign Up to Learn More About Advocacy Opportunities in Illinois


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact David Olsen | 847-779-6947 [email protected]



Alzheimer's Facts and Figures in Illinois

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


Prevalence



woman holding glasses

230,000

Individuals living with Alzheimer's in Illinois


This number is projected to increase 13.0% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.

Mortality


3,954

Deaths from Alzheimer's in Illinois in 2019

couple hugging on bench

Alzheimer's is the 6th leading cause of death in Illinois.

There were 1,740 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 17% higher than average.


Caregiving



caregiver hugging

Value of unpaid care work

Hours of unpaid care


Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2020. In Illinois, there are 381,000 dementia caregivers, who each provide an average of 24 hours of unpaid care per week

Costs

Medicare

$30,339

per capita Medicare spending on people with dementia

Medicaid

$1,787,000,000

Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals



9,795

# of people in hospice with a primary diagonsis of dementia


1,624

# of emergency department visits per 1,000 people with dementia


People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.


The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.