Establish a Permanent Dementia Coordinator Position in Indiana

Indiana needs an advocate within state government to coordinate necessary state services for people living with and impacted by Alzheimer’s and all dementia. This dementia coordinator position would also take the lead in developing an Indiana Alzheimer’s State Plan. With 110,000 Hoosiers living with Alzheimer’s and over 300,000 caregivers providing needed care to these vulnerable residents, we need to ensure state government fully represents and serves all those impacted by this disease.

Empower First Responders with Dementia Training

First responders are on the front lines of protecting and caring for all people, including those living with Alzheimer’s or dementia. Interactions with first responders often occur during stressful times, making it even more important that these critical workers have the skills and experience to be able to effectively communicate with and serve this vulnerable population. The Alzheimer’s Association is collaborating with allied organizations to ensure that first responders have a basic level of training on Alzheimer’s and other dementias.

Indiana State Plan Overview

In July 2011, Governor Mitch Daniels appointed the Governor's Task Force on Alzheimer's Disease, tasked with developing Indiana's plan to address Alzheimer's disease.  The Task Force included representatives from state agencies, non-profit organizations, care provider agencies as well as state legislators, researchers, issue experts, caregivers, and health care providers. After reviewing the concerns and suggestions expressed during public input sessions, the Task Force published the Indiana Plan for Alzheimer's Disease and Related Dementias 2013-2017 in 2013.


Indiana State Advocacy Day

February 01, 2021

Join our Indiana Advocacy Summit! This virtual event organizes, trains and connects Alzheimer's advocates with their state legislators, compelling our leaders to engage in the fight to make Indiana dementia capable. In memory of those we've lost and in honor of those currently living with the disease, join us and help push Alzheimer's Association-backed legislation to better the lives of individuals, families, caregivers and communities in Indiana impacted by Alzheimer's disease. All you need is passion - no experience required! The Summit will begin on Monday evening with a virtual opening ceremony. During the week, we will have virtual meetings with our state legislators. The Summit will conclude on Friday with a virtual thank you celebration.

Sign Up to Learn More About Advocacy Opportunities in Indiana

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact David Sklar | 3175872215 [email protected]

Alzheimer's Facts and Figures in Indiana

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


woman holding glasses


Individuals living with Alzheimer's in Indiana

This number is projected to increase 18.2% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.



Deaths from Alzheimer's in Indiana in 2019

couple hugging on bench

Alzheimer's is the 6th leading cause of death in Indiana.

There were 870 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 14% higher than average.


caregiver hugging

Value of unpaid care work

Hours of unpaid care

Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2020. In Indiana, there are 215,000 dementia caregivers, who each provide an average of 25 hours of unpaid care per week




per capita Medicare spending on people with dementia



Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals


# of people in hospice with a primary diagonsis of dementia


# of emergency department visits per 1,000 people with dementia

People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.

The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit to view the full report.