Support H.B.2004 - Charlie's Bill - Preventing Transfer Trauma for Residents of Assisted Living

Here in Kansas, there are cases where residents of assisted living centers are discharged from their home without notice or cause and are often dropped off at hotels or homeless shelters. Residents deserve the same rights as apartment residents in Kansas who can appeal any discharge from their home. Transfers or discharges can be very traumatizing to residents, especially those with dementia. Charlie Imthurn, a resident with Alzheimer's, was a victim of this practice when he was evicted from his residence in an assisted living community without cause and died nine days later due to the trauma of moving. The Alzheimer’s Association is calling on legislators to support Charlie’s bill, which would create the right to appeal an involuntary discharge or transfer from an adult residential care facility. An appeal process would reduce the number of Kansans who would experience transfer trauma and therefore save lives.

Support H.B.2122: The Supported Decision-Making Agreements Act

The process of obtaining guardianship can be very expensive and time-consuming. Families in Kansas need additional options to successfully support those that need decision-making assistance but are not in need of guardianship. The Alzheimer’s Association is calling on legislators to support the Supported Decision-Making Agreements Act. This bill will provide a statutory framework for adults who want decision-making assistance and allows applicants to keep all their rights while receiving additional assistance in certain areas of their life, such as financial or medical issues.

Support H.B. 2543 Access to Senior Care Act services for those with Younger-Onset Alzheimer's disease.

This bill would give access to the vital services provided in the Senior Care Act to those under the age of 60 who are diagnosed with younger-onset Alzheimer's disease. These services can include attendant care, respite care, homemaker, chore services and adult day care.

Kansas State Plan Overview

In May 2019 Governor Laura Kelly signed Executive Order No. 19-08, Establishing the Kansas Alzheimer’s Disease Task Force. Gov. Kelly asked the Task Force to: assess the current and future impact of Alzheimer’s disease on residents of the State of Kansas; examine the existing industries, services, and resources addressing the needs of persons with Alzheimer’s, their families, and caregivers; and develop a strategy to mobilize a state response to this public health crisis. Task Force members were appointed by either the Governor or other elected officials as listed in the Executive Order. The members were divided into committees that studied, researched and documented the following topics for the plan: Public Awareness, Access to Care, Family Caregivers, Training and Workforce, Safety and Legal, Research and Data, Dementia Care, and Rural. The Task Force met bi-monthly between the months of August and November of 2019 and in January 2020, published the 2020 Kansas Alzheimer’s Disease Plan. An executive summary was also prepared.


Kansas State Advocacy Day

February 01, 2022

Kansas’ State Advocacy day was held on February 1st and was a huge success. Thank you to our speakers Rep. Susan Concannon, Breana Tucker, Doug Neal, Camille Russell, Rachel Imthurn, and to all of our advocates who joined us for this special event! We hope to see you again next year!

Sign Up to Learn More About Advocacy Opportunities in Kansas

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Jamie Gideon | 316-448-6588 [email protected]

Alzheimer's Facts and Figures in Kansas

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


woman holding glasses


Individuals living with Alzheimer's in Kansas

This number is projected to increase 12.7% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.



Deaths from Alzheimer's in Kansas in 2019

couple hugging on bench

There were 519 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 20% higher than average.


caregiver hugging

Value of unpaid care work

Hours of unpaid care

Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In Kansas, there are 86,000 dementia caregivers, who each provide an average of 21 hours of unpaid care per week




per capita Medicare spending on people with dementia



Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals


# of people in hospice with a primary diagonsis of dementia


# of emergency department visits per 1,000 people with dementia

People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.

The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.