Congressional Profiles

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.


Establish a Dementia Services Coordinator Position

Today, numerous Kentucky agencies administer a variety of programs critical to people living with dementia. However, these efforts are often siloed, with multiple state agencies working separately from one another. In addition, Kentucky misses out on critical federal dollars that could be utilized to improve the long-term services and supports infrastructure for those living with Alzheimer's and other dementia. It is essential that Kentucky establish and fund a full-time Dementia Services Coordinator within the Cabinet for Health and Family Services to coordinate programs and services, manage the Alzheimer's Disease and Related Disorders Council and apply for grant opportunities.

Update the Alzheimer's Disease and Related Disorders Council and Alzheimer's State Plan

While Kentucky is fortunate to have an Alzheimer's State Plan in existence, the plan, and the Council responsible for the plan, is outdated. Kentucky needs an updated State Alzheimer’s Plan crafted and coordinated by a revived Alzheimer's Disease and Related Disorders Council that includes key state officials, private and public sector stakeholders, researchers and advocates. An updated Plan and functioning Council are crucial in outlining a comprehensive and coordinated approach to addressing Alzheimer’s in Kentucky.

Empower Home Health Workers with Dementia Training

Home health workers play a critical role in keeping individuals living with Alzheimer's safe and healthy in their homes and communities. These individuals provide companionship, basic medical services and enable people with dementia to stay in their most familiar and intimate environment. However, without proper training on how to recognize the signs of dementia and how to effectively communicate with people with dementia, the quality of care may decline. The Alzheimer’s Association is calling on legislators to support forthcoming legislation in Kentucky that will require dementia-specific training for home health workers on understanding specific behavior symptoms, effective communication strategies, protocols for contacting caregivers and available local resources.

Kentucky State Plan Overview

The Kentucky Alzheimer's Disease and Related Disorders Council was established through legislation that was enacted during the 2000 legislative session. In 2007, the Commonwealth of Kentucky enacted Senate Joint Resolution 6, which directed the Kentucky Alzheimer's Disease and Related Disorders Council to create a comprehensive strategy to respond to the growing Alzheimer's crisis within the state.  Appointed by the governor, the Council includes representatives from state agencies, local health departments, academia, and the medical research community as well as consumers and caregivers. The Council formed a wider work group to research and draft the State Plan. In January 2008, the Council published Setting a Roadmap to Address Alzheimer's in the Commonwealth: A Report of the Current and Anticipated Future Impact of Alzheimer's Disease and Related Dementias on Kentuckians with Recommendations for Action. This plan was updated in 2017 and includes updated and new recommendations for combating Alzheimer's and dementia in Kentucky. 


Kentucky State Advocacy Day

February 08, 2021

Join fellow Alzheimer’s advocates for an exciting week of virtual advocacy urging Kentucky lawmakers to support people with dementia and their families. Over the course of four days, we will have a series of informative and engaging virtual events with state government leaders to highlight the urgent need for dementia training for home health workers, a revised Alzheimer's Council and updated state plan, and the establishment and funding of a full-time Dementia Services Coordinator. We will host a series of events February 8-11, 2021, that will mix storytelling, advocacy training and direct engagement with your state government representatives. And we will all wear purple to unify us in our virtual efforts!

Sign Up to Learn More About Advocacy Opportunities in Kentucky

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact MacKenzie Wallace Longoria | | [email protected]

Alzheimer's Facts and Figures in Kentucky

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2020 13,000 34,000 27,000 75,000
2025 15,000 42,000 29,000 86,000

Percentage change from 2020




Medicaid costs of caring for people with Alzheimer's (2020)


change in costs from 2020 to 2025



per capita Medicare spending on people with dementia (in 2019 dollars)

HOSPICE (2017)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia



Number of geriatricians in 2019


increase needed to meet Alzheimer's population needs in 2050

Hospitals (2017)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate


increase in emergency deparment visits since 2007


274 Thousand

Number of Caregivers

312 Million

Total Hours of Unpaid Care

$4.09 Billion

Total Value of Unpaid Care

Number of Deaths from Alzheimer's Disease (2018)

1,674 total deaths in Kentucky
6th leading cause of death in Kentucky

For more information, view the 2020 Alzheimer's Disease Facts and Figures report at

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 13.8 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $305 billion in 2020, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly 1 in 3 seniors who dies each year has Alzheimer's or another dementia.