Increase Public Awareness, Early Detection And Diagnosis

Highlight the Need for Early Detection and Diagnosis Among Diverse Communities Across Kentucky.

Knowing the warning signs of Alzheimer's and other dementias is critical to getting a diagnosis at the earliest stages of the disease. As we know, the earlier the diagnosis, the faster a robust care plan can be put in place. However, without working to understand the needs of the peoples and cultures throughout our diverse Commonwealth, we risk failing to reach populations that may be most in need. We will be working together with the Kentucky Department for Public Health, county health departments and other partners to conduct culturally appropriate public health campaigns aimed at increasing awareness and the value of early detection.

Build a Dementia-Capable Workforce

2019 Dementia Working Group

In order to meet the workforce needs of Kentucky, we need an in-depth analysis of the preparedness of the long-term care industry and those that provide long-term services and supports to the growing population of aging Kentuckians with Alzheimer's or other dementias and their caregivers. During the 2019 interim session, members of the Alzheimer's Disease and Related Disorders Council, legislators and other key stakeholders will join together to assess the direct-care workforce, identify the challenges facing this workforce, understand gaps in training and education and provide meaningful input to policymakers about how to create incentives and career pathways.

Increase Access to Home and Community-Based Services

Alzheimer's Association to provide stakeholder feedback for 1915(c) wavier redesign.

As the Department for Medicaid Services works to undertake several recommendations to the 1915(c) waiver program in 2018, 2019 and beyond, we will work with the Department to help provide valuable input related to many of the issues surrounding program administration and consistency, improving access to, quality and equity of Home and Community Based services across all waivers and the development of person-centered, dementia-specific care planning tools. We submitted our first public comment in April of 2019 and will continue to have a seat at the table for these important changes.

Kentucky State Plan Overview

The Kentucky Alzheimer's Disease and Related Disorders Council was established through legislation that was enacted during the 2000 legislative session. In 2007, the Commonwealth of Kentucky enacted Senate Joint Resolution 6, which directed the Kentucky Alzheimer's Disease and Related Disorders Council to create a comprehensive strategy to respond to the growing Alzheimer's crisis within the state.  Appointed by the governor, the Council includes representatives from state agencies, local health departments, academia, and the medical research community as well as consumers and caregivers. The Council formed a wider work group to research and draft the State Plan. In January 2008, the Council published Setting a Roadmap to Address Alzheimer's in the Commonwealth: A Report of the Current and Anticipated Future Impact of Alzheimer's Disease and Related Dementias on Kentuckians with Recommendations for Action. This plan was updated in 2017 and includes updated and new recommendations for combating Alzheimer's and dementia in Kentucky. 


Kentucky State Advocacy Day

February 19, 2019

Join us in Frankfort for our annual Alzheimer's Association Advocacy Day! Your voice and your story MATTER as we work to compel legislators to engage in the fight for a dementia-capable Kentucky. Register today!;jsessionid=00000000.app298a?pagename=advocacy_action&scid=1744&_ga=2.184090022.1899164382.1547568759-741426503.1537383212&NONCE_TOKEN=7228E30E467D5AFFF2E90BA5013C07E9

2020 Advocacy Forum

March 22-24, 2020

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.

Sign Up to Learn More About Advocacy Opportunities in Kentucky

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Mackenzie Wallace Longoria, J.D. | | [email protected]

Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.

Alzheimer's Facts and Figures in Kentucky

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 13,000 34,000 27,000 73,000
2025 15,000 42,000 29,000 86,000

Percentage change from 2019




Medicaid costs of caring for people with Alzheimer's (2019)


change in costs from 2019 to 2025



per capita Medicare spending on people with dementia (in 2018 dollars)

HOSPICE (2016)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia

Hospitals (2015)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate



Number of Caregivers


Total Hours of Unpaid Care


Total Value of Unpaid Care


Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)


6th leading cause of death in Kentucky

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.