Fund the Office of Dementia Services

Today, numerous Kentucky state agencies administer a variety of programs that are essential to people living with dementia. These services include Medicaid, adult protective services, and health professional and facility licensure. However, these efforts are often siloed, with multiple state agencies working separately from one another. The passage of Senate Bill 74 in the 2020 session successfully updated the Office of Dementia Services and in October of 2021, the first coordinator for that office was hired. This is a major step on the road to making Kentucky a dementia capable state! But in order for that position to be secured, and the Office to properly function, it is critical that legislators increase funding by $120,000 for this position in the forthcoming budget.

Strengthen Dementia Care in Assisted Living Communities

With more than 40% of residents living in assisted living communities having a form of dementia, it is critical that the staff caring for these individuals have the proper dementia-specific training that they need to properly care for residents. However, current training standards are severely lacking. As conversations continue to strengthen memory care in Kentucky, now is the time to ensure all residents of assisted living are cared for by dementia-trained staff. The Alzheimer’s Association is urging state policymakers to adopt rigorous dementia-specific standards for training, education and licensure that are uniform across the industry.

Kentucky State Plan Overview

The Kentucky Alzheimer's Disease and Related Disorders Council was established through legislation that was enacted during the 2000 legislative session. In 2007, the Commonwealth of Kentucky enacted Senate Joint Resolution 6, which directed the Kentucky Alzheimer's Disease and Related Disorders Council to create a comprehensive strategy to respond to the growing Alzheimer's crisis within the state.  Appointed by the governor, the Council includes representatives from state agencies, local health departments, academia, and the medical research community as well as consumers and caregivers. The Council formed a wider work group to research and draft the State Plan. In January 2008, the Council published Setting a Roadmap to Address Alzheimer's in the Commonwealth: A Report of the Current and Anticipated Future Impact of Alzheimer's Disease and Related Dementias on Kentuckians with Recommendations for Action. This plan was updated in 2017 and includes updated and new recommendations for combating Alzheimer's and dementia in Kentucky. 


Kentucky State Advocacy Day

March 03, 2022

Join your fellow Kentuckians on Thursday, March 3rd, 2022, to rally state lawmakers to support funding the Office of Dementia Services and critical training and education standards for Assisted Living Communities. Advocates will come together to hear from state leaders, understand our legislative asks during the legislative session and meet with state legislators to share their story and urge support of these critical priorities. Never advocated before? No problem! We’ll train you and there will be plenty of opportunity to ask questions before meeting with state officials. We will host a training session in the week leading up to the event to make sure all your questions are answered. Don't miss out on this amazing advocacy opportunity and join us in the fight to #ENDALZ!

Sign Up to Learn More About Advocacy Opportunities in Kentucky

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State Affairs Contact Mackenzie Wallace, J.D. | [email protected]

Alzheimer's Facts and Figures in Kentucky

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


woman holding glasses


Individuals living with Alzheimer's in Kentucky

This number is projected to increase 14.7% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.



Deaths from Alzheimer's in Kentucky in 2019

couple hugging on bench

Alzheimer's is the 6th leading cause of death in Kentucky.

There were 921 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 22% higher than average.


caregiver hugging

Value of unpaid care work

Hours of unpaid care

Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In Kentucky, there are 150,000 dementia caregivers, who each provide an average of 34 hours of unpaid care per week




per capita Medicare spending on people with dementia



Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals


# of people in hospice with a primary diagonsis of dementia


# of emergency department visits per 1,000 people with dementia

People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.

The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit to view the full report.