Minnesota

MINNESOTA 2019 STATE POLICY PRIORITIES

Increase Public Awareness, Early Detection And Diagnosis

Support Data Driven Decisions

Support and fund collection of dementia-related data, including cognitive decline data in 2020 and caregiver data in 2021 through the annual Behavioral Risk Factor Surveillance System (BRFSS) surveys. BRFSS is the world's largest public health survey, conducted annually in all states and U.S. territories as a partnership between the Centers for Disease Control and Prevention (CDC) and state departments of health. BRFSS asks questions about health behaviors, access to care, and other health related topics to generate state-specific information about the impact and burden on public health. Collecting this specific dementia-related data in Minnesota will help us make smart policy decisions for all people living with dementia, their caregivers and our budgets.

Build a Dementia-Capable Workforce

Ensure a Dementia-Capable Workforce - Assisted Living Settings

As Minnesota creates a new license model for assisted living settings, we must ensure competency-based dementia training of all direct service, administrative, supervisory, and other staff who are involved in the delivery of care to those with Alzheimer's and other dementias in these settings. Direct care workers constitute one of the largest and fastest growing workforces in the country. These workers provide an estimated 70 to 80 percent of the paid hands-on long-term care and personal assistance to the elderly, individuals with disabilities and those suffering from chronic conditions.

Build a Dementia-Capable Workforce

Ensure a Dementia-Capable Workforce - First Responders

Law enforcement officers frequently interact with individuals who have Alzheimer's and other dementias in a variety of settings. They are generally among the first to be contacted regarding emergencies, abuse and exploitation. Many first responders receive little or no formal training to prepare them for the unique physical, behavioral, and communications challenges related to people with dementia. The Alzheimer's Association is supporting efforts to develop and implement dementia training standards for law enforcement agencies.

Enhance the Quality of Care in Residential Settings

Enhance Quality of Care in Residential Settings - Dementia Standards

Develop baseline standards of person-centered dementia care within an Assisted Living license model. As Minnesota considers the creation of a new licensing system, we should also implement minimum standards for dementia care providers including person-centered care practices, therapeutic activities and environments, physical plant standards, emergency procedures/safety plans, the process and criteria for placement within, transfer from and discharge from special care unit, as well as consumer rights in general.

Advance Alzheimer's Policy

Enhance Quality of Care in Residential Settings

Create an Assisted Living license designed to provide clear expectations for providers and older and vulnerable adults and to address the complexity and confusion in the market today. Licenses should include standards for staffing, training, admission and discharge criteria, as well as definitions of and certification for dementia care and protections to preserve access for individuals who rely on the Elderly Waiver Program.

Advance Alzheimer's Policy

Accelerate Alzheimer's Research

The Alzheimer's Association advocates for maintaining funding for Alzheimer's disease research through the state appropriation to the Minnesota Partnership for Biotechnology and Medical Genomics. As the most expensive disease in the nation according to recent research published in the New England Journal of Medicine, we must continue to support research to better understand Alzheimer's.



Minnesota State Plan Overview

In 2017 the Minnesota Legislature (2017 Session Law) called on the Minnesota Board on Aging to reconvene the Alzheimer's Disease Working Group (ADWG) to review and revise the 2011 report, Preparing Minnesota for Alzheimer's: the Budgetary, Social and Personal Impacts. The ADWG was appointed in late 2017 and met throughout 2018. Like the first work group created in 2009 when the Minnesota Legislature first charged the Minnesota Board on Aging to create a plan, this working group made recommendations for policies and programs that would prepare Minnesota for the future. The 2018 work group was led by a Minnesotan who is living with mild cognitive impairment and included health care providers, family caregivers, researchers, representatives from state and local health and human services agencies. The ADWG gathered expert research and background information and solicited input from the general public. The Alzheimer's Disease Working Group Legislative Report was published in January 2019 and presented to the Minnesota Legislature.




ADVOCACY EVENTS

Minnesota State Advocacy Day

February 04, 2019

Join us at the State Capitol in St. Paul on Monday, February 4th. We'll be starting the day at 10 am with a program in the Rotunda of the Capitol Building. After lunch, you'll be spend the afternoon meeting with your state legislators and advocating for our Alzheimer's legislative priorities. Email [email protected] for more information.


2020 Advocacy Forum

March 22-24, 2020 alz.org/forum

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.


Sign Up to Learn More About Advocacy Opportunities in Minnesota


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Beth McMullen | 6122033530 | [email protected]



Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.



Alzheimer's Facts and Figures in Minnesota

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 14,000 40,000 44,000 97,000
2025 17,000 51,000 48,000 120,000

Percentage change from 2019

Medicaid

$876

MILLION

Medicaid costs of caring for people with Alzheimer's (2019)

22.7%

change in costs from 2019 to 2025


Medicare

$20,430

per capita Medicare spending on people with dementia (in 2018 dollars)


HOSPICE (2016)

5,096

#

of people in hospice have a primary diagnosis of dementia


21%

of people in hospice with a primary diagnosis of dementia

Hospitals (2015)

1,279

#

of emergency department visits per 1,000 people with dementia


18.7%

dementia patient hospital readmission rate

Caregiving

255,000

Number of Caregivers

291,000,000

Total Hours of Unpaid Care

$3,677,000,000

Total Value of Unpaid Care

$205,000,000

Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)

2,474

6th leading cause of death in Minnesota

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at alz.org/facts.


U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.



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