Support Dementia Caregivers by Protecting the Alzheimer's Grants for Respite

Over 190,000 Missourians are providing unpaid care to loved ones with Alzheimer’s or other dementia thus enabling a large portion of the 120,000 people living with dementia in Missouri to live in the community, instead of moving into more costly residential long-term care. In cases where finances are tight, Missouri’s state-funded Alzheimer’s Respite Care Program steps in with limited but critical support. The program funds can help provide occasional adult day care services or a personal care aide in the home a few times a month allowing the family caregiver to take care of their personal medical issues, complete tasks outside of the home, or simply enjoy time off from the demands of caregiving. To serve the growing number of family caregivers, it is critical that legislators maintain funding of $450,000 in the Department of Health and Senior Services to continue respite assistance for families caring for a loved one with Alzheimer's at home.

Maintain Funding for the Structured Family Caregiver Waiver

The Structured Family Caregiver Program allows up to 300 Missouri HealthNet (Medicaid) beneficiaries, including those living with Alzheimer’s or other dementia, to live in their choice of home setting with the caregiver of their choice. This increases access to home and community based-services and supports family caregivers of people with dementia by providing reimbursement for daily caregiving tasks. This waiver was approved by the Centers for Medicare and Medicaid Services (CMS) in February of 2020 and the Alzheimer’s Association secured $4.3 million in funding for the program. It is critical that legislators maintain this funding in the Department of Health and Senior Services budget for this program.

Missouri State Plan Overview

In 2009, the Missouri General Assembly established the Missouri Alzheimer's State Plan Task Force through passage of HB 272. Tasked with assessing the challenges posed by Alzheimer's disease and related dementias within the state, the Task Force included representatives from state agencies, health care providers, and community organizations as well as caregivers, state legislators, an individual living with Alzheimer's, and the Lieutenant Governor. After collecting public input regarding community frustrations, concerns, and advice on dealing with this disease, the Task Force presented the Missouri Alzheimer's State Plan, published in November 2010.


Missouri State Advocacy Day

March 07, 2022

Join your fellow Alzheimer’s advocates as we rally state lawmakers for funding and programs that advance and assist those with Alzheimer's and their caregivers. Advocates will meet virtually to hear from state leaders, understand the Alzheimer’s Association’s leading asks during the legislative session and meet with state legislators to share their story and urge support of these critical priorities. Never advocated before? No problem! We’ll train you and there will be plenty of opportunity to ask questions before meeting with state officials.

Sign Up to Learn More About Advocacy Opportunities in Missouri

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Jerry Dowell | 573-489-4263 [email protected]

Alzheimer's Facts and Figures in Missouri

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


woman holding glasses


Individuals living with Alzheimer's in Missouri

This number is projected to increase 8.3% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.



Deaths from Alzheimer's in Missouri in 2019

couple hugging on bench

There has been a 154% increase in Alzheimer's deaths since 2000. Alzheimer's is the 6th leading cause of death in Missouri.

There were 1,037 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 20% higher than average.


caregiver hugging

Value of unpaid care work

Hours of unpaid care

Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In Missouri, there are 194,000 dementia caregivers, who each provide an average of 29 hours of unpaid care per week




per capita Medicare spending on people with dementia



Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals


# of people in hospice with a primary diagonsis of dementia


# of emergency department visits per 1,000 people with dementia

People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.

The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.