Increase Access to Home and Community-Based Services

Fund Alzheimer's Grants for Respite

Caregivers often experience declining health, job loss and financial difficulties. Respite assistance gives care partners a much needed break. In Missouri, 314,000 family caregivers provide 358 million hours of unpaid care at a value of more than $4 billion dollars, much of which would otherwise be provided in a nursing home and funded by Medicaid. We support maintaining the $450,000 in the Budget for the Department of Health and Senior Services, HB 10. Respite assistance provides funds for respite support or care-related products for families for a loved one with Alzheimer's at home. Family caregivers reported that the state funded respite assistance program helps them keep their loved ones at home longer. If this program delays nursing home placement by just one month, Missouri could save more than $2 million annually in Medicaid costs.

Increase Access to Home and Community-Based Services

Pass the Structured Family Caregiver Act HB 466

Home and Community based Services (HCBS) are designed to provide necessary assistance in meeting the unmet needs of seniors, adults with disabilities and enable the individual to live in the least restrictive environment. In a 2016 Alzheimer's Association survey, Missouri families overwhelmingly preferred home and community options over other long-term care options. Structured Family Caregiver is a pilot program for MO HealthNet participants who have been diagnosed with Alzheimer's or related dementia to receive care at home from a family member or other full-time caregiver. An agency would administer the program and provide professional support to the caregiver and care recipient including care planning, training, monthly visits and remote monitoring. The caregiver, who must live full time with the person needing services would receive a daily stipend while they provide care for their loved one's personal needs, relieving financial hardship.

Advance Alzheimer's Policy

Missouri Alzheimer's State Plan

In 2009, the Missouri General Assembly established the Missouri Alzheimer's State Plan Task Force through passage of HB 272. Tasked with assessing the challenges posed by Alzheimer's disease and related dementias within the state. As a result, the Missouri Alzheimer's State Plan was published in November 2010. The Missouri Alzheimer's State Plan legislation would update additional key areas of focus in the existing Missouri Alzheimer's State Plan.

Missouri State Plan Overview

In 2009, the Missouri General Assembly established the Missouri Alzheimer's State Plan Task Force through passage of HB 272. Tasked with assessing the challenges posed by Alzheimer's disease and related dementias within the state, the Task Force included representatives from state agencies, health care providers, and community organizations as well as caregivers, state legislators, an individual living with Alzheimer's, and the Lieutenant Governor. After collecting public input regarding community frustrations, concerns, and advice on dealing with this disease, the Task Force presented the Missouri Alzheimer's State Plan, published in November 2010.


Missouri State Advocacy Day

February 27, 2019

Help us speak with one voice as we travel to Jefferson City to educate elected officials about Alzheimer's disease and to enhance access to care, support and services for people with dementia and their families. The day will conclude with a ceremony in the Capitol rotunda.

2020 Advocacy Forum

March 22-24, 2020 alz.org/forum

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.

Sign Up to Learn More About Advocacy Opportunities in Missouri

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Jerry Dowell | 5734894263 | [email protected]

Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.

Alzheimer's Facts and Figures in Missouri

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 18,000 49,000 47,000 110,000
2025 21,000 61,000 51,000 130,000

Percentage change from 2019




Medicaid costs of caring for people with Alzheimer's (2019)


change in costs from 2019 to 2025



per capita Medicare spending on people with dementia (in 2018 dollars)

HOSPICE (2016)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia

Hospitals (2015)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate



Number of Caregivers


Total Hours of Unpaid Care


Total Value of Unpaid Care


Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)


6th leading cause of death in Missouri

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at alz.org/facts.

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.