North Carolina

NORTH CAROLINA 2021 STATE POLICY PRIORITIES

Equip North Carolina with a Dementia-Capable Workforce

Individuals with Alzheimer’s and other dementia have unique needs that often make care delivery, communication and interaction more challenging and demanding. Direct care workers in long-term care settings and adult day settings often do not have sufficient dementia-specific knowledge to effectively support those living with the disease. The Alzheimer’s Association is calling on state policymakers to ensure all direct care workers receive dementia-specific training following a culturally competent training curriculum that incorporates the principles of person-centered care to best address the needs of care recipients with dementia.

Empower Adult Protective Services Workers with Dementia-Training

Adult Protective Services (APS) workers are on the front lines of protecting older adults from exploitation and harm. Many of the adults they are charged to protect are living with Alzheimer’s or dementia, and it is critical that these workers have the training to understand how to best serve this population. That’s why the Alzheimer’s Association is advocating for APS workers to be trained regarding dementia, communication with individuals, and spotting cases of abuse, neglect or financial exploitation.

Support Dementia Family Caregivers

Over 479,000 North Carolinians are providing unpaid care to loved ones with Alzheimer’s or another form of dementia thus enabling a large portion of the 180,000 people living with dementia in the state to live in the community, instead of moving into more costly residential long-term care. In cases where finances are tight, North Carolina’s state-funded Project CARE steps in with limited but critical respite support. The Program funds can help provide occasional adult day care services or a personal care aide in the home a few times a month allowing the family caregiver to address their own medical issues and complete tasks outside of the home. The Program also provides critical care management and services with dementia-trained family consultants across the state. With the dementia population expected to increase by 16.7% by 2025, the Alzheimer’s Association is calling on state policymakers to approve a 10% increase in funding for Project CARE to support family caregivers.



North Carolina State Plan Overview

In 2014 language was included in North Carolina's budget bill, Senate Bill 744, calling for the development of a state Alzheimer's plan. In March 2015, the North Carolina Institute of Medicine convened a Task Force to develop an Alzheimer's disease strategic plan at the direction of the state department of health. The Task Force was comprised of health care providers, advocates, and other stakeholders who worked together to determine the needs of those with Alzheimer's and other dementias in the state. Dementia-Capable North Carolina: A Strategic Plan for Addressing Alzheimer's Disease and Related Dementias was published in March 2016.



ADVOCACY EVENTS

North Carolina State Advocacy Day

March 11, 2021

Join fellow Alzheimer’s advocates for an exciting day of virtual advocacy urging North Carolina’s state lawmakers to support people with dementia and their families. We will have a series of engaging virtual events with state government leaders to highlight the urgent need for dementia training for direct care workers and to fund critical supports for family caregivers. Our advocacy day will mix storytelling, advocacy training and direct engagement with your state government representatives. And we will all wear purple to unify us in our virtual efforts!


Sign Up to Learn More About Advocacy Opportunities in North Carolina


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Scott Herrick | 336-327-0438 [email protected]



Alzheimer's Facts and Figures in North Carolina

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


Prevalence



woman holding glasses

180,000

Individuals living with Alzheimer's in North Carolina


This number is projected to increase 16.7% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.

Mortality


4,508

Deaths from Alzheimer's in North Carolina in 2019

couple hugging on bench

There has been a 161% increase in Alzheimer's deaths since 2000. Alzheimer's is the 6th leading cause of death in North Carolina.

There were 1,082 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 11% higher than average.


Caregiving



caregiver hugging

Value of unpaid care work

Hours of unpaid care


Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2020. In North Carolina, there are 358,000 dementia caregivers, who each provide an average of 28 hours of unpaid care per week

Costs

Medicare

$24,737

per capita Medicare spending on people with dementia

Medicaid

$1,332,000,000

Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals



8,486

# of people in hospice with a primary diagonsis of dementia


1,684

# of emergency department visits per 1,000 people with dementia


People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.


The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.