North Carolina

NORTH CAROLINA 2022 STATE POLICY PRIORITIES

Ensure Regular Updates to the North Carolina Alzheimer’s State Plan

In 2016, North Carolina released its first Alzheimer’s State Plan. Since then, much has changed in our state yet the Plan has not been updated. The Alzheimer’s Association is calling on North Carolina lawmakers to approve legislation requiring the Division of Health and Human Services to formally review and update the Alzheimer's State Plan every four years. Additionally, the legislation requires the plan to be presented to the North Carolina legislature at the beginning of the yearly session so the public can see what the state is proposing and working on to better support people living with dementia and their caregivers.

Make Alzheimer's a Public Health Priority in North Carolina

Alzheimer’s is a growing public health crisis in our state. The burden of the disease in our state is large and growing larger. Currently, over 180,000 North Carolinians are living with Alzheimer’s, which is expected to rise to over 210,000 by the year 2025 – a nearly 17 percent increase over the next few years. Caring for these individuals has a significant impact on our state. In 2020, the cost of providing care to these individuals through Medicaid was $1.3 billion and is expected to increase by over 22 percent by 2025. However, Alzheimer's is often viewed only as an aging issue. We are urging lawmakers to require the NC Division of Public Health to formally recognize Alzheimer's as a public health priority and include relevant Alzheimer's related information on their website and through county public health departments.

Support Dementia Caregivers by Increasing Funding for Alzheimer’s Respite

Over 350,000 North Carolinians are providing unpaid care to loved ones with Alzheimer’s or another form of dementia thus enabling many people living with dementia in North Carolina to live in the community, instead of moving into more costly residential long-term care. Respite care provides a much-needed break for family caregivers. In cases where finances are tight, North Carolina’s state-funded Alzheimer’s Respite program, Project CARE (Caregiver Alternatives to Running on Empty) steps in with limited but critical support. To serve the growing number of family caregivers, the Alzheimer’s Association is calling on policymakers to increase funding for the program by $500,000 with an annual 10% increase from 2023-27.



North Carolina State Plan Overview

In 2014 language was included in North Carolina's budget bill, Senate Bill 744, calling for the development of a state Alzheimer's plan. In March 2015, the North Carolina Institute of Medicine convened a Task Force to develop an Alzheimer's disease strategic plan at the direction of the state department of health. The Task Force was comprised of health care providers, advocates, and other stakeholders who worked together to determine the needs of those with Alzheimer's and other dementias in the state. Dementia-Capable North Carolina: A Strategic Plan for Addressing Alzheimer's Disease and Related Dementias was published in March 2016.



ADVOCACY EVENTS

North Carolina State Advocacy Day

April 27, 2022

The 2022 Alzheimer's Association Advocacy Day will bring Advocates together at the North Carolina State Capitol to bring awareness about Alzheimer's disease and other dementias. Prior to attending, you will learn about the legislative process, learn how to convey your personal story to key decision makers affecting policies for individuals living with Alzheimer's disease and their families, and bring awareness to the importance of the Alzheimer's Association public policy priorities. We will be gathering at the NC Legislative Complex in the heart of downtown Raleigh for a special briefing, before departing in small groups to advocate and ask for specific legislative action to help combat those in NC facing Alzheimer's!


Sign Up to Learn More About Advocacy Opportunities in North Carolina


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Scott Herrick | 336-327-0438 [email protected]



Alzheimer's Facts and Figures in North Carolina

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


Prevalence



woman holding glasses

180,000

Individuals living with Alzheimer's in North Carolina


This number is projected to increase 16.7% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.

Mortality


4,508

Deaths from Alzheimer's in North Carolina in 2019

couple hugging on bench

There has been a 161% increase in Alzheimer's deaths since 2000. Alzheimer's is the 6th leading cause of death in North Carolina.

There were 1,082 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 11% higher than average.


Caregiving



caregiver hugging

Value of unpaid care work

Hours of unpaid care


Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In North Carolina, there are 356,000 dementia caregivers, who each provide an average of 28 hours of unpaid care per week

Costs

Medicare

$25,009

per capita Medicare spending on people with dementia

Medicaid

$1,332,000,000

Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals



8,486

# of people in hospice with a primary diagonsis of dementia


1,684

# of emergency department visits per 1,000 people with dementia


People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.


The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.