Congressional Profiles

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Update Nebraska's State Plan for Alzheimer's

Alzheimer's disease is an urgent public health crisis, and the 6th leading cause of death in Nebraska. The Nebraska State Plan for Alzheimer's Disease and Related Dementias (ADRD) was released in 2016, providing 31 recommendations for advancing the state's efforts to address this crisis. Now, 5 years later, it is time for an update to that plan. The need for this update is reinforced by our state's aging population and the gaps in our health care and long-term care systems, which have been further highlighted by the ongoing COVID-19 crisis. The Alzheimer’s Association will urge the legislature to reignite a State Plan Task Force as a first step in developing a new State Alzheimer’s Plan.

Nebraska State Plan Overview

In May 2015, Governor Pete Ricketts signed LB320 calling for the formation of a State Plan on Alzheimer's disease and related disorders. The legislation charges the Aging Nebraskans Task Force with assessing existing resources in the state, developing recommendations to meet the growing needs of those affected by Alzheimer's, and to develop strategies to identify gaps in community services. The Task Force included representatives from state agencies, long-term care organizations, elder law, and community organizations as well as economists, seniors, caregivers, and aging advocates. The Nebraska State Plan for Alzheimer's Disease and Related Dementias was published in June 2016. A State Plan Infographic is also available.


Nebraska State Advocacy Day

March 16, 2021

Join Alzheimer's advocates from across the state for a week of virtual engagement with your Unicameral senators to highlight the urgent need for an updated State Plan for Alzheimer’s. Share the facts, share your story, and raise your voice to #ENDALZ!

Sign Up to Learn More About Advocacy Opportunities in Nebraska

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State Affairs Contact Terry Streetman | 402-616-2758 | [email protected]

Alzheimer's Facts and Figures in Nebraska

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2020 5,000 14,000 16,000 35,000
2025 6,000 17,000 16,000 40,000

Percentage change from 2020




Medicaid costs of caring for people with Alzheimer's (2020)


change in costs from 2020 to 2025



per capita Medicare spending on people with dementia (in 2019 dollars)

HOSPICE (2017)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia



Number of geriatricians in 2019


increase needed to meet Alzheimer's population needs in 2050

Hospitals (2017)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate


increase in emergency deparment visits since 2007


83 Thousand

Number of Caregivers

95 Million

Total Hours of Unpaid Care

$1.24 Billion

Total Value of Unpaid Care

Number of Deaths from Alzheimer's Disease (2018)

683 total deaths in Nebraska
6th leading cause of death in Nebraska

For more information, view the 2020 Alzheimer's Disease Facts and Figures report at

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 13.8 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $305 billion in 2020, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly 1 in 3 seniors who dies each year has Alzheimer's or another dementia.