New York

NEW YORK 2019 STATE POLICY PRIORITIES

Increase Public Awareness, Early Detection And Diagnosis

New York State's Focus should be Early Diagnosis

Nationally and in New York State, studies show that people do not understand Alzheimer's and the importance and benefits of an early diagnosis and care planning. According to data from the 2016 Behavioral Risk Factor Surveillance Survey, 1 in 10 New Yorkers age 45 and older report confusion or memory loss, but more than half of them have not spoken to a physician about their symptoms. To address this public health crisis, there is an urgent need to promote a greater understanding of the early warning signs of Alzheimer's Disease and the value of early diagnosis and planning. We are requesting a pilot project for $1 million dollars in funding for a targeted Statewide Public Awareness Campaign focused on the importance and benefits of an Early Diagnosis and the promotion of New York State 1-800 Helpline.

Build a Dementia-Capable Workforce

Expand Dementia Training Requirements for Special Needs Assisted Living Facilities in New York State.

Special Needs Assisted Living Residences (SNALR) promote aging in place with the most integrated, least restrictive settings for people in New York State living with Alzheimer's Disease and other dementias. While SNALRs that market towards individuals with dementia or cognitive impairments must submit a special needs plan to the New York State Department of Health on staffing levels and training, there is no minimum requirement on the number of hours of training needed or the content of the training. We are advocating to mandate six (6) hours of person-centered, comprehensive dementia training for SNALRs which shall include the resident's individuality, Supportive and therapeutic environments, and most importantly to protect the health, safety and welfare of such persons with Alzheimer's Disease and other dementias.

Build a Dementia-Capable Workforce

Online dementia training for Law Enforcement Recruits in New York State.

As the New Yorkers continue to age, there will be more cases of Alzheimer's disease and more frequent interactions between law enforcement and those with Alzheimer's or other dementias. It can be difficult for law enforcement to know what to do and how to properly address a situation with someone who has dementia. In coordination with the New York State Department of Health and New York State Coordinating Council Related to Alzheimer's Disease and Dementia, we are advocating for all new law enforcement recruits across New York's 62 counties to receive one (1) hour of online training such as the Alzheimer's Association's Approaching Alzheimer's: First Responder Training and put measures into place to ensure safety for people with Alzheimer's and other dementias.



New York State Plan Overview

The New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias (Council) was established in 2007 by Public Health Law § 2004-a (Chapter 58 of the Laws of 2007, Part B). The Council was formed to facilitate interagency planning and policy-making, review specific agency initiatives for their impact on services related to the care of persons with dementia and their families, and provide a continuing forum for concerns and discussions related to the formulation of a comprehensive state policy for Alzheimer's disease. The Council is charged with providing reports to the Governor and the Legislature every two years beginning in June 2009. The reports must set forth the Council's recommendations for state policy relating to dementia and include a review of services initiated and coordinated by public and private agencies to meet the needs of persons with Alzheimer's disease and other dementias and their families, this report provides a beginning to this review. New York's first state Alzheimer's plan, the Annual Report of the New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias in December 2009 with updated reports published in 2013, 2015, and 2017. 



ADVOCACY EVENTS

New York State Advocacy Day

March 05, 2019

Join hundreds of others from around New York State in support of the over 400,000 New Yorkers living with Alzheimer's disease. Meet your lawmakers, share your story and advocate for public policies that impact people living with Alzheimer's, their families and their caregivers. Box lunch and free transportation to and from the State Capitol in Albany will be provided. Don't forget to wear purple! #ENDALZ Register online: https://goo.gl/forms/VrmesZiyjZGis9FW2 - REGISTRATION CLOSES FRIDAY FEBRUARY 15th! Questions? E-mail: [email protected]


2020 Advocacy Forum

March 22-24, 2020 alz.org/forum

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.


Sign Up to Learn More About Advocacy Opportunities in New York


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Ian Magerkurth | 6467934851 | [email protected]



Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.



Alzheimer's Facts and Figures in New York

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 55,000 170,000 180,000 400,000
2025 61,000 200,000 200,000 460,000

Percentage change from 2019

Medicaid

$5.037

BILLION

Medicaid costs of caring for people with Alzheimer's (2019)

23.9%

change in costs from 2019 to 2025


Medicare

$29,385

per capita Medicare spending on people with dementia (in 2018 dollars)


HOSPICE (2016)

7,564

#

of people in hospice have a primary diagnosis of dementia


16%

of people in hospice with a primary diagnosis of dementia

Hospitals (2015)

1,384

#

of emergency department visits per 1,000 people with dementia


23.2%

dementia patient hospital readmission rate

Caregiving

1,014,000

Number of Caregivers

1,155,000,000

Total Hours of Unpaid Care

$14,594,000,000

Total Value of Unpaid Care

$895,000,000

Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)

3,521

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at alz.org/facts.


U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.



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