New York

NEW YORK 2022 STATE POLICY PRIORITIES

Support Dementia Caregivers through the Alzheimer’s Disease Caregiver Support Initiative (ADCSI)

The COVID-19 pandemic has exposed the critical role of family caregivers in supporting people with dementia. New York has been a leader in this area with the Alzheimer’s Disease Caregiver Support Initiative. This evidence-based initiative delays the placement of individuals living with dementia in long-term care, helps families avoid spending down their income and savings quickly to pay for more costly care, and allows community partners to expand statewide programs and services that empower New Yorkers to be proactive in their approach to Alzheimer's. The Alzheimer’s Association urges New York's state lawmakers to preserve the current funding level of $25 million for the Alzheimer’s Disease Caregiver Support Initiative in the final 2022-23 State Budget.

Support Alzheimer's Disease Public Health Funding

This funding is critical to maintaining our state's dementia-capable public health infrastructure by providing a two-pronged systems investment focusing on community support while also equipping the medical system to provide early diagnoses, quality care management, and linkages to community services. The Alzheimer's Association urges New York's state lawmakers to preserve the current funding level of $1.37 million for the Alzheimer's Disease Public Health Funding in the final 2022-23 State Budget.

Establish Certification Criteria for Memory Care

There is currently no certification criteria for what constitutes memory care for residents in nursing homes. Help ensure those living with Alzheimer's and other dementia are provided the specialized care nursing homes advertise. This proposal will better equip the staff in long-term care communities and ensure individuals living with dementia receive the quality of care they deserve. The Alzheimer's Association urges Governor Hochul to release this proposal in a 30-Day Amendment so stakeholders can review the policy to ensure it aligns with best practices in dementia care.



New York State Plan Overview

The New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias (Council) was established in 2007 by Public Health Law § 2004-a (Chapter 58 of the Laws of 2007, Part B). The Council was formed to facilitate interagency planning and policy-making, review specific agency initiatives for their impact on services related to the care of persons with dementia and their families, and provide a continuing forum for concerns and discussions related to the formulation of a comprehensive state policy for Alzheimer's disease. The Council is charged with providing reports to the Governor and the Legislature every two years beginning in June 2009. The reports must set forth the Council's recommendations for state policy relating to dementia and include a review of services initiated and coordinated by public and private agencies to meet the needs of persons with Alzheimer's disease and other dementias and their families, this report provides a beginning to this review. New York's first state Alzheimer's plan, the Annual Report of the New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias in December 2009 with updated reports published every two years thereafter. The most recent report is entitled 2019 Report of the New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias.





ADVOCACY EVENTS

New York State Advocacy Day

March 08, 2022

Join Alzheimer’s advocates from across New York on Tuesday, March 8, 2022 for the Alzheimer's Association's Annual State Advocacy Day! This year’s event will be virtual, giving advocates from all regions of the Empire State an opportunity to have their voices heard in Albany. Is this your state advocacy event with the Association? Don’t worry! We will train you and there will be plenty of opportunities to ask questions before we turn the Capitol purple.


Sign Up to Learn More About Advocacy Opportunities in New York


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Bill Gustafson | 5858027922 [email protected]



Alzheimer's Facts and Figures in New York

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


Prevalence



woman holding glasses

410,000

Individuals living with Alzheimer's in New York


This number is projected to increase 12.2% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.

Mortality


3,753

Deaths from Alzheimer's in New York in 2019

couple hugging on bench

There were 2,210 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 19% higher than average.


Caregiving



caregiver hugging

Value of unpaid care work

Hours of unpaid care


Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In New York, there are 563,000 dementia caregivers, who each provide an average of 29 hours of unpaid care per week

Costs

Medicare

$34,000

per capita Medicare spending on people with dementia

Medicaid

$5,453,000,000

Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals



7,669

# of people in hospice with a primary diagonsis of dementia


1,461

# of emergency department visits per 1,000 people with dementia


People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.


The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.