New York

NEW YORK 2020 STATE POLICY PRIORITIES

Increase Public Awareness, Early Detection And Diagnosis

Incease Early Detection and Diagnosis in New York's Underserved Communities

According to data from the 2016 Behavioral Risk Factor Surveillance Survey, 1 in 10 New Yorkers age 45 and older report confusion or memory loss, but more than half of them have not spoken to a physician about their symptoms. To address this public health crisis, there is an urgent need to promote a greater understanding of the early warning signs of Alzheimer's Disease and the value of early diagnosis and planning. We are requesting a pilot campaign for $1 million dollars in funding for a targeted Statewide Public Awareness Campaign focused on the importance and benefits of an early diagnosis, specifically targeted towards underserved communities, including rural communities and communities of color.

Enhance the Quality of Care in Residential Settings

Make Dementia Financially Equitable Across All Residential Settings

State governments must ensure residential care settings remain accessible to people with dementia who can no longer live in their communities. This year we are calling on state lawmakers to implement a Medicaid dementia rate add-on to the Medicaid ALP rate, as is done with the nursing home rate, to cover the additional resources needed to care for people with dementia. A modest investment now could save significant Medicaid dollars down the road by reducing the number of Medicaid-eligible people with dementia in nursing homes.

Advance Alzheimer's Policy

Support the Family Caregiver Tax Credit

As New York’s population continues to age and more individuals are diagnosed with Alzheimer’s disease and other dementias, the amount of time and money spent by family caregivers will only continue to grow. This legislation will provide crucial financial relief to unpaid family caregivers through a tax credit on eligible goods and services including home health aides, adult day care, respite care, home modifications, and transportation – all of which help their loved ones continue to “age in place.”



New York State Plan Overview

The New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias (Council) was established in 2007 by Public Health Law § 2004-a (Chapter 58 of the Laws of 2007, Part B). The Council was formed to facilitate interagency planning and policy-making, review specific agency initiatives for their impact on services related to the care of persons with dementia and their families, and provide a continuing forum for concerns and discussions related to the formulation of a comprehensive state policy for Alzheimer's disease. The Council is charged with providing reports to the Governor and the Legislature every two years beginning in June 2009. The reports must set forth the Council's recommendations for state policy relating to dementia and include a review of services initiated and coordinated by public and private agencies to meet the needs of persons with Alzheimer's disease and other dementias and their families, this report provides a beginning to this review. New York's first state Alzheimer's plan, the Annual Report of the New York State Coordinating Council for Services Related to Alzheimer's Disease and Other Dementias in December 2009 with updated reports published in 2013, 2015, and 2017. 



ADVOCACY EVENTS

New York State Advocacy Day

April 20, 2020

Join hundreds of others from across the state in support of the over 400,000 New Yorkers living with Alzheimer's. Meet your lawmakers, share your story and advocate for public policies that impact people living with dementia, their families and their caregivers. Box lunch and free transportation to and from the State Capitol in Albany will be provided. Don't forget to wear purple! Please email questions to [email protected]


Sign Up to Learn More About Advocacy Opportunities in New York


Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Ian Magerkurth | 631-707-3060 | [email protected]



Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.



Alzheimer's Facts and Figures in New York

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2020 58,000 170,000 190,000 410,000
2025 61,000 200,000 200,000 460,000

Percentage change from 2020

Medicaid

$5,453

MILLION

Medicaid costs of caring for people with Alzheimer's (2020)

15.6%

change in costs from 2020 to 2025


Medicare

$31,353

per capita Medicare spending on people with dementia (in 2019 dollars)


HOSPICE (2017)

7,669

#

of people in hospice have a primary diagnosis of dementia


16%

of people in hospice with a primary diagnosis of dementia

Geriatricians

605

Number of geriatricians in 2019


35%

increase needed to meet Alzheimer's population needs in 2050

Hospitals (2017)

1,446

#

of emergency department visits per 1,000 people with dementia


23.7%

dementia patient hospital readmission rate


23.9%

increase in emergency deparment visits since 2007

Caregiving

1.01 Million

Number of Caregivers



1.15 Billion

Total Hours of Unpaid Care



$15.09 Billion

Total Value of Unpaid Care


Number of Deaths from Alzheimer's Disease (2018)

3,755 total deaths in New York

For more information, view the 2020 Alzheimer's Disease Facts and Figures report at alz.org/facts.

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 13.8 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $305 billion in 2020, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly 1 in 3 seniors who dies each year has Alzheimer's or another dementia.



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