Increase Access to Home and Community-Based Services

It is Time to Fund Family Caregiver Respite in Oregon!

Last year, nearly 184,000 Oregon family caregivers of people with Alzheimer's disease and other dementias provided an estimated 209 million hours of unpaid care, a contribution to Oregon valued at $2.64 billion. Oregon caregivers need relief! In 2019, we request that the Oregon Legislature craft a budget note that directs DHS Aging and People with Disabilities to convene stakeholders to develop the RELIEF program and a Medicaid waiver proposal to provide respite to Oregon's family caregivers. RELIEF (REspite: Living Independently, Energizing Families) is a concept that would create a new eligibility category and benefit package for people who are “at risk” of needing long-term services and supports in the future who don't currently meet Medicaid financial eligibility criteria (up to 400% of federal poverty level). The benefit would be limited to $500 per month that can be used for Adult Day Services, Home Care Services, or other approved services that provide a caregiver with a break from caregiving.

Oregon State Plan Overview

The State Plan for Alzheimer's Disease in Oregon (SPADO) Task Force was formed in late 2010, coordinated by the Alzheimer's Association Oregon Chapter. The Task Force included state government agencies, academic researchers, healthcare providers, family caregivers, state legislators, and non-profit organizations. Charged with drafting recommendations to address the most critical needs of Oregonians impacted by Alzheimer's disease and other dementias, the Task Force gathered public input to inform and validate the proposed recommendations. The State Plan for Alzheimer's Disease and Related Dementias in Oregon was published in July 2012 and signed by Governor John Kitzhaber. In March 2013, the Oregon Legislature endorsed SPADO by unanimously supporting Senate Concurrent Resolution 1. The SPADO Steering Committee works together to encourage engagement of public and private sector stakeholders to improve the state's response to community needs associated with Alzheimer's disease and related dementias and implement the recommendations provided in the state plan.


Oregon State Advocacy Day

April 12, 2019

Conquering Alzheimer's is as much a matter of public policy as scientific discovery and we need your help to change the future of this disease.Join us Friday, April 12, for our annual Alzheimer's Advocacy Day at the Oregon Capitol. We will provide training on Alzheimer's-related policy issues and schedule meetings with your lawmakers. No experience is needed...just show up full of passion ready to make a difference! Your voice is critical in raising awareness for Alzheimer's care, support and research; when you speak, legislators listen! Please join us! you can register here: http://bit.ly/2019-OR-Advocacy

2020 Advocacy Forum

March 22-24, 2020 alz.org/forum

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.

Sign Up to Learn More About Advocacy Opportunities in Oregon

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact Sara Kofman | 5034160202 | [email protected]

Elected Officials

Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.

Alzheimer's Facts and Figures in Oregon

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 11,000 28,000 28,000 67,000
2025 13,000 40,000 32,000 84,000

Percentage change from 2019




Medicaid costs of caring for people with Alzheimer's (2019)


change in costs from 2019 to 2025



per capita Medicare spending on people with dementia (in 2018 dollars)

HOSPICE (2016)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia

Hospitals (2015)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate



Number of Caregivers


Total Hours of Unpaid Care


Total Value of Unpaid Care


Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)


6th leading cause of death in Oregon

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at alz.org/facts.

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.