Rhode Island


Establish a Permanent Dementia Coordinator Position in Rhode Island

As of 2021, there are nearly 25,000 Rhode Islanders living with Alzheimer's disease and more than 38,000 unpaid caregivers providing support for them. Although the state released an updated State Plan on Alzheimer's Disease & Related Disorders in 2019, implementation has lagged. In 2022, the Alzheimer’s Association will urge state policymakers to establish a permanent dementia coordinator staff position to lead implementation of the plan and coordinate dementia related efforts across agencies to better support Rhode Islanders living with dementia and their families.

Rhode Island State Plan Overview

In April 2012, the Rhode Island General Assembly enacted Senate Bill 2858, directing the Long-Term Care Coordinating Council to lead a workgroup on the development of a state plan, to be co-chaired by the chair of the Long-Term Care Coordinating Council, the lieutenant governor or designee and the director of the division of elderly affairs. The Workgroup collected public feedback and published Rhode Island’s State Plan on Alzheimer’s Disease & Related Disorders in September 2013. In February 2019, the Long-Term Care Coordinating Council published the 2019 Update, Rhode Island State Plan on Alzheimer's Disease and Related Disorders.


Rhode Island State Advocacy Day

April 14, 2022

Join us at the Rhode Island State Advocacy Day at the Rhode Island State House on April 14th, 2022 (COVID-19 permitting) to urge state lawmakers to prioritize establishing a permanent dementia coordinator staff position. The State Advocacy Day will include education on state policy priorities and opportunities to engage with elected officials. Never advocated before? No problem! We’ll train you and there will be plenty of opportunity to ask questions before meeting with state officials. More information is coming soon!

Sign Up to Learn More About Advocacy Opportunities in Rhode Island

Sign me up to participate in the upcoming State Advocacy Day!

State Affairs Contact David Carlin | 1401862-5027 [email protected]

Alzheimer's Facts and Figures in Rhode Island

Alzheimer's Disease Facts and Figures, an annual report released by the Alzheimer's Association®, reveals the burden of Alzheimer's and dementia on individuals, caregivers, government and the nation's health care system.


woman holding glasses


Individuals living with Alzheimer's in Rhode Island

This number is projected to increase 12.5% between 2020 and 2025.

Nationally, there are more than 6 million Americans living with Alzheimer's. This number is expected to more than double by 2050.



Deaths from Alzheimer's in Rhode Island in 2019

couple hugging on bench

Alzheimer's is the 5th leading cause of death in Rhode Island.

There were 194 more deaths than expected from Alzheimer's and dementia during the COVID-19 pandemic in 2020, 15% higher than average.


caregiver hugging

Value of unpaid care work

Hours of unpaid care

Nationally, Alzheimer's and dementia caregivers provided nearly $257 billion in unpaid care in 2021. In Rhode Island, there are 39,000 dementia caregivers, who each provide an average of 25 hours of unpaid care per week




per capita Medicare spending on people with dementia



Medicaid costs of caring for people with Alzheimer's in 2020

Hospice and Hospitals


# of people in hospice with a primary diagonsis of dementia


# of emergency department visits per 1,000 people with dementia

People with Alzheimer's disease have twice as many hospital stays per year as other older people. Nationally, emergency department visits for those with dementia have increased nearly 30% over the past decade.

The 2021 Alzheimer's Disease Facts and Figures report contains data on the impact of Alzheimer's on the nation and in every state across the country.
Visit alz.org/facts to view the full report.