Congressional Profiles

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The 86th Texas Legislative Session wrapped up and we are excited to share that the Legislature made giant strides for Texans dealing with Alzheimer's disease! Together with our amazing advocates, we accomplished all of our 2019 state priorities.  

The 2020-2021 State Budget passed with an inclusion of an investment of $1 million for The Texas Department of State Health Services’ Alzheimer’s Disease Program.The Alzheimer’s Disease Program (ADP) provides information and resources to improve care and support for persons with the disease and their caregivers. With these additional and necessary funds, the ADP will have the capacity to provide educational resources for physicians and healthcare professional about the value of early detection and accurate diagnosis; increase public education about brain health and dementia risk reduction, and; maintain Alzheimer’s data in the state.

In addition to the historic increase in funding,the Alzheimer’s State Plan bill (S.B. 999 Campbell /H.B. 1915 Zerwas) has been signed into law. The Texas State Alzheimer's plan will explore the current impact of Alzheimer's disease in the state and outline what steps the state and necessary stakeholders must take over the next five years to improve services and support for people with the disease and their families. Senate Bill 999 by Senator Dr. Campbell of New Braunfels and its companion bill, House Bill 1915, by Representative Dr. Zerwas of Richmond, requires Department of State Health Services to coordinate the development and implementation of a five year state plan on Alzheimer's disease and related dementias.

Finally, a dementia training bill (H.B. 3428 Capriglione) was passed into law, requiring dementia training for Adult Protective Services and certain Area Agency on Aging workers. H.B. 3428 will help reduce elder abuse and neglect, increase the rate of reporting, and improve understanding of how cognitive impairment may affect screening, investigation, and service planning. H.B. 3824 by Representative Giovanni Capriglione (District 98 - Southlake) requires an initial 4 hours of dementia training and 2 hours of continuing education annually for Adult Protective Service employees and certain Area Agency on Aging workers. This bill will help to ensure that the workforce is adequately trained in providing care and support to the dementia community.


Build a Dementia-Capable Workforce

Building a Dementia Capable Workforce in Texas

There is a looming healthcare workforce shortage in Texas and state lawmakers need to turn their attention to exploring solutions that will support specialized training in dementia care and create incentives and career pathways to recruit and retain professionals who specialize in gerontology, geriatrics, and dementia care.

Advance Alzheimer's Policy

Address the Inappropriate Use of Antipsychotic Drugs in Persons with Dementia

In most cases, antipsychotic medications should not be the first line of treatment to treat dementia-related behavioral and psychological symptoms. Antipsychotic medications have been found to have serious health implications for older adults with Alzheimer’s disease and other dementias, including increased risk of stroke and death. Antipsychotic medications have received the FDA’s black box warning when prescribed to individuals with dementia. Since 2015, Texas Health and Human Services (HHSC) and many stakeholders have been working to reduce the inappropriate use of antipsychotic medications in nursing facility residents, particularly those with dementia. There is concern among stakeholders that antipsychotic medications continue to be misused and inappropriately prescribed among persons with dementia in long-term care. The Alzheimer's Association is currently working with state lawmakers to ensure nonpharmacological interventions to address behavioral issues in dementia patients are attempted prior to the use of an antipsychotic drug, and that direct care workers must be adequately trained in nonpharmacological interventions.

Texas State Plan Overview

In March 2009, the Texas Council on Alzheimer's Disease and Related Disorders and the Texas Department of State Health Services Alzheimer's Disease Program formed a steering committee charged with developing the state's response to Alzheimer's disease. Working with a statewide partnership, representatives from the healthcare sector, community organizations, academia, state agencies, and businesses as well as families impacted by Alzheimer's drafted Putting the Pieces Together: A Comprehensive Plan for Addressing the Burden of Alzheimer's Disease in Texas 2010-2015. The plan was published in September 2010. As a result of Senate Bill 999 (2019), the Texas Department of State Health Services was required to collaborate with stakeholders to develop a new five-year state plan to address Alzheimer's disease. In Winter 2019, the Texas the Department of State Health Services released the 2019-2023 State Plan for Alzheimer's Disease. 


Texas State Advocacy Day

March 04, 2020

Join us for a Community Conversation on the issues affecting those living with Alzheimer's and their families in Texas. Be a part of our discussion with state legislators as we work to find policy solutions to make our state dementia-capable. You can join an Alzheimer's Community Conversation at various locations throughout the state. Please email Clarissa Clarke at [email protected] for a list of confirmed dates and locations.

Sign Up to Learn More About Advocacy Opportunities in Texas

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State Affairs Contact Melissa Sanchez | 7133141301 | [email protected]

Alzheimer's Facts and Figures in Texas

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2020 69,000 180,000 160,000 400,000
2025 83,000 230,000 180,000 490,000

Percentage change from 2020




Medicaid costs of caring for people with Alzheimer's (2020)


change in costs from 2020 to 2025



per capita Medicare spending on people with dementia (in 2019 dollars)

HOSPICE (2017)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia



Number of geriatricians in 2019


increase needed to meet Alzheimer's population needs in 2050

Hospitals (2017)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate


increase in emergency deparment visits since 2007


1.45 Million

Number of Caregivers

1.65 Billion

Total Hours of Unpaid Care

$21.63 Billion

Total Value of Unpaid Care

Number of Deaths from Alzheimer's Disease (2018)

9,763 total deaths in Texas
6th leading cause of death in Texas
207% increase in Alzheimer's deaths since 2000

For more information, view the 2020 Alzheimer's Disease Facts and Figures report at alz.org/facts.

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 13.8 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $305 billion in 2020, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly 1 in 3 seniors who dies each year has Alzheimer's or another dementia.