The 86th Texas Legislative Session has just wrapped up and we are excited to share that the Legislature made giant strides for Texans dealing with Alzheimer's disease! Together with our amazing advocates, we accomplished all of our 2019 state priorities.
The 2020-2021 State Budget passed with an inclusion of an investment of $1 million for The Texas Department of State Health Services’ Alzheimer’s Disease Program.The Alzheimer’s Disease Program (ADP) provides information and resources to improve care and support for persons with the disease and their caregivers. With these additional and necessary funds, the ADP will have the capacity to provide educational resources for physicians and healthcare professional about the value of early detection and accurate diagnosis; increase public education about brain health and dementia risk reduction, and; maintain Alzheimer’s data in the state.
In addition to the historic increase in funding,the Alzheimer’s State Plan bill (S.B. 999 Campbell /H.B. 1915 Zerwas) has been signed into law. The Texas State Alzheimer's plan will explore the current impact of Alzheimer's disease in the state and outline what steps the state and necessary stakeholders must take over the next five years to improve services and support for people with the disease and their families. Senate Bill 999 by Senator Dr. Campbell of New Braunfels and its companion bill, House Bill 1915, by Representative Dr. Zerwas of Richmond, requires Department of State Health Services to coordinate the development and implementation of a five year state plan on Alzheimer's disease and related dementias.
Finally, a dementia training bill (H.B. 3428 Capriglione) was passed into law, requiring dementia training for Adult Protective Services and certain Area Agency on Aging workers. H.B. 3428 will help reduce elder abuse and neglect, increase the rate of reporting, and improve understanding of how cognitive impairment may affect screening, investigation, and service planning. H.B. 3824 by Representative Giovanni Capriglione (District 98 - Southlake) requires an initial 4 hours of dementia training and 2 hours of continuing education annually for Adult Protective Service employees and certain Area Agency on Aging workers. This bill will help to ensure that the workforce is adequately trained in providing care and support to the dementia community.
Increase Public Awareness, Early Detection And Diagnosis
Strengthening the Alzheimer's Care Infrastructure in Texas
The Alzheimer's Association supports an increase funding for the Alzheimer's Disease Program housed at the Department of State Health Services (DSHS) to $1 million, to enhance the state's role in providing support and resources for persons living with the disease, caregivers, and healthcare professionals. The one million dollars is intended to be be used by DSHS to 1) provide professional education programs for healthcare providers about the value of early detection and accurate diagnosis of Alzheimer's disease and related dementias; 2) increase public awareness and education about brain health and lifestyle interventions that may reduce the risk of dementia; 3) conduct Alzheimer's data surveillance in Texas, and 4) coordinate stakeholder implementation of the Texas State Plan on Alzheimer's disease.
Enhance the Quality of Care in Residential Settings
Supporting Person-Centered Care for Individuals with Dementia
Enhancing training for healthcare professionals can enable Texans with Alzheimer's to receive person-centered quality care. Many people find the changes in behavior caused by Alzheimer's disease to be the most challenging and distressing effect of the disease. The chief caused of behavioral symptoms in persons with Alzheimer's is the progressive deterioration of brain cells. However, medication, environmental influences and some medical conditions also can cause symptoms or make them worse. Persons with Alzheimer's disease deserve to receive person-centered care from healthcare workers that are adequately trained in Alzheimer's care. We support changes to current training programs for healthcare professionals to ensure high quality care for all Texans with Alzheimer's.
Advance Alzheimer's Policy
Require Texas to have a State Plan on Alzheimer's Disease.
Texas needs a clear strategy to address the Alzheimer's epidemic. Since 2007, nearly every state has developed a State Alzheimer's Plan. These comprehensive plans identify critical issues, recommend solutions, and create a road map to guide a state's development in to a dementia-capable state. Texas was one of the first states to develop a state plan that extended from 2010-2015. Today, Texas remains one of a few states without an updated state plan. A state plan will ensure that Texas maintains the infrastructure and accountability necessary to confront the sweeping economic and social needs of Alzheimer's disease. We are urging the Department of State Health Services' Alzheimer's Disease Program to coordinate the creation and implementation of a State Plan on Alzheimer's disease that is updated every five years.
Texas State Plan Overview
In March 2009, the Texas Council on Alzheimer's Disease and Related Disorders and the Texas Department of State Health Services Alzheimer's Disease Program formed a steering committee charged with developing the state's response to Alzheimer's disease. Working with a statewide partnership, representatives from the healthcare sector, community organizations, academia, state agencies, and businesses as well as families impacted by Alzheimer's drafted Putting the Pieces Together: A Comprehensive Plan for Addressing the Burden of Alzheimer's Disease in Texas 2010-2015. The plan was published in September 2010. Today, the Texas Department of State Health Services is collaborating with stakeholders to develop a new five-year state plan to address Alzheimer's disease.
Texas State Advocacy Day
April 17, 2019
Thank you to all our advocates who joined us on this exciting day as we stormed the Texas Capitol DRESSED IN PURPLE, to show our elected officials how many residents of Texas are impacted by Alzheimer's disease. Your stories and advocacy efforts were critical in helping us achieve wins for the Alzheimer's community this legislative session. We look forward to having you join us at our next Advocacy Day in 2020. Learn how you can join our advocates from across the State by contacting Melissa Sanchez, Public Policy Director, at [email protected] or call 713-314-1301.
2020 Advocacy Forum
March 22-24, 2020 alz.org/forum
As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.
Join us in Washington for an inspiring three-day event filled with networking, training and education.
Be part of the movement that's making a difference in the fight against Alzheimer's.
Sign Up to Learn More About Advocacy Opportunities in Texas
State Affairs Contact Melissa Sanchez | 7133141301 | [email protected]
Enter your address here to see your elected officials' positions on Alzheimer's and ways you can contact them to support the Alzheimer's community.
Number of People Aged 65 and Older With Alzheimer's by Age
Percentage change from 2019
Medicaid costs of caring for people with Alzheimer's (2019)
change in costs from 2019 to 2025
per capita Medicare spending on people with dementia (in 2018 dollars)
of people in hospice have a primary diagnosis of dementia
of people in hospice with a primary diagnosis of dementia
of emergency department visits per 1,000 people with dementia
dementia patient hospital readmission rate
Number of Caregivers
Total Hours of Unpaid Care
Total Value of Unpaid Care
Higher Health Costs of Caregivers
|6th||leading cause of death in Texas|
|200%||increase in Alzheimer's deaths since 2000|
For more information, view the 2019 Alzheimer's Disease Facts and Figures report at alz.org/facts.
Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.