Increase Access to Home and Community-Based Services

Interdisciplinary Memory Disorders Clinic with Dementia Care Management (IMDCDCM)

Dementia Care Coordinators (DCCs) are the critical center point of provision of care. An important feature of the Memory Disorders Clinic model involves acknowledging that the family caregivers of dementia patients are crucial components of the system. When family caregivers cease to be able to provide adequate care, dementia patients can no longer remain safely at home and require significantly more hospitalizations and health care resources. As such, family members are identified as participants in the plan of care. DCCs must have specialized training in important aspects of Mild Cognitive Impairment, Alzheimer's disease and other dementias, and information on disease trajectories, local and regional resources and treatment options. The DCCs provide education about the disease and appropriate steps to prepare for disease-related changes. These can include legal steps such as advance directives, wills, and establishment of Power of Attorney. DCCs aid in getting necessary medical appointments, obtaining required social services and provide emotional support to the patient and families. They have appropriate partnerships with regional agencies including the Alzheimer's Association to connect patients with existing services. DCCs make at least one home visit to assess the needs and safety of the home environment. They have routine phone calls with the patient/family and establish meaningful relationships in order to guide patients and families through the illness maximizing satisfaction and helpful service provision while minimizing unnecessary healthcare utilization. They can arrange medical appointments and accompany patients to visits as appropriate. We support Virginia's efforts to increase the Dementia Care Coordinators program.

Increase Access to Home and Community-Based Services

Strengthening Dementia Capable Medicaid Home and Community-Based Services

Medicaid is the largest payer of long-term services and supports for Virginians with dementia. In Virginia, Medicaid now uses Managed Care Organizations (MCOs or Health Plans) to oversee these services. The Alzheimer's Association is advocating for the Department of Medical Assistance Services (DMAS) to contract with the MCOs to identify and describe, in detail, the core community-based dementia services that MCOs should offer to individuals with Alzheimer's disease and dementia and their families. Examples include: • A valid/reliable assessment tool to determine cognitive status, as well as a way to identify people for assessment; • Personal Emergency Response System (PERS) with gyroscopes rather than those requiring manual activation; • GPS tracking devices for missing persons; • Personal care for up to 10 hours per day to cover time away from home for a family caregiver who works or to otherwise move closer to 24/7 supervision; • Medication management specifically for persons with dementia; • Increased medical oversight of waiver services and staff; and • Family supports, such as counseling and training, similar to those provided through DARS' federal grant offering (Family Access to Memory Impairment and Loss Information, Engagement and Support (FAMILIES) program).

Virginia State Plan Overview

The Virginia Alzheimer's Disease and Related Disorders Commission serves as an advisory board within the executive branch and assists people living with Alzheimer's disease and related disorders as well as their caregivers and families. In 2009, the Commission began collecting public input to inform a state plan on Alzheimer's disease. Utilizing aging as well as stress and coping theory, in December 2011 the Commission published the Dementia State Plan: Virginia's Response to the Needs of Individuals with Dementia and their Caregivers. In 2015 an updated version of the plan, 2015-2019 Dementia State Plan: Virginia's Response to the Needs of Individuals with Dementia and their Caregivers, was published.


Virginia State Advocacy Day

January 24, 2019

Virginia Alzheimer's Advocacy Day. Join us as we turn Richmond purple

2020 Advocacy Forum

March 22-24, 2020

As an Alzheimer's advocate, you've worked to advance critical public policy, making a difference in the lives of all those impacted by Alzheimer's. Together we've achieved great increases in federal Alzheimer's research funding and secured critical advances in care and support. But we can't take our successes for granted — we need to keep the pressure on.

Join us in Washington for an inspiring three-day event filled with networking, training and education.

Be part of the movement that's making a difference in the fight against Alzheimer's.

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State Affairs Contact Carter Harrison | 8049672594 | [email protected]

Elected Officials

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Alzheimer's Facts and Figures in Virginia

Number of People Aged 65 and Older With Alzheimer's by Age

Year 65-74 75-84 85+ TOTAL
* Totals may not add due to rounding
2019 25,000 66,000 58,000 150,000
2025 29,000 89,000 68,000 190,000

Percentage change from 2019




Medicaid costs of caring for people with Alzheimer's (2019)


change in costs from 2019 to 2025



per capita Medicare spending on people with dementia (in 2018 dollars)

HOSPICE (2016)



of people in hospice have a primary diagnosis of dementia


of people in hospice with a primary diagnosis of dementia

Hospitals (2015)



of emergency department visits per 1,000 people with dementia


dementia patient hospital readmission rate



Number of Caregivers


Total Hours of Unpaid Care


Total Value of Unpaid Care


Higher Health Costs of Caregivers

Number of Deaths from Alzheimer's Disease (2017)


6th leading cause of death in Virginia

For more information, view the 2019 Alzheimer's Disease Facts and Figures report at

U.S. Statistics

Over 5 million Americans are living with Alzheimer's, and as many as 14 million will have the disease in 2050. The cost of caring for those with Alzheimer's and other dementias is estimated to total $290 billion in 2019, increasing to $1.1 trillion (in today's dollars) by mid-century. Nearly one in every three seniors who dies each year has Alzheimer's or another dementia.