AIM is leading the way to advance policies to improve access to quality health care services for individuals living with Alzheimer's disease. The health care system, as it exists today, all too often fails both those living with dementia and their caregivers. Because of AIM’s efforts with the Alzheimer’s Association, addressing the shortcomings through better policies is now front and center on Capitol Hill and in federal agencies.
Working with bipartisan Congressional champions AIM was instrumental in the development and passage of the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act (S. 2076/H.R. 4256). Signed into law in December 2018, the bill creates an Alzheimer's public health infrastructure across the country to implement effective Alzheimer's interventions, including increasing early detection and diagnosis, reducing risk and preventing avoidable hospitalizations.
The BOLD Infrastructure for Alzheimer's Act also increases implementation of the Centers for Disease Control and Prevention's (CDC) Public Health Road Map nationwide by establishing Alzheimer's centers of excellence, providing cooperative agreements to public health departments, and increasing data collection, analysis and timely reporting.
AIM has delivered important victories in care. But the agenda ahead remains immense.
As the 116th Congress convenes, AIM will continue to advance care priorities for the Alzheimer's community including the Palliative Care and Hospice Education and Training Act (PCHETA) (H.R. 647). Palliative and hospice care – with a focus on managing and easing symptoms, reducing pain and stress, and increasing comfort – can improve both the quality of care and quality of life for those with advanced dementia. PCHETA would ensure an adequate, well-trained palliative care workforce through workforce training, education and awareness, and enhanced research.
AIM and the Alzheimer’s Association advocate for an ambitious policy agenda to improve care for our community. We need your support to drive Congress to act. Continue to ask your Members of Congress to enact policies that ensure individuals living with Alzheimer’s can rely on a health care system prepared to assist them as they contend with this disease.
The following bills are supported by AIM in the 116th Congress.