AIM is leading the way to advance policies to improve access to quality health care services for individuals living with Alzheimer's disease. The health care system, as it exists today, all too often fails both those living with dementia and their caregivers. Because of AIM’s efforts with the Alzheimer’s Association, addressing the shortcomings through better policies is now front and center on Capitol Hill and in federal agencies.
Working with bipartisan Congressional champions AIM was instrumental in the development and passage of the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act (S. 2076/H.R. 4256). Signed into law in December 2018, the law directs the Centers for Disease Control and Prevention (CDC) to strengthen the public health infrastructure across the country by implementing effective Alzheimer's interventions focused on public health issues such as increasing early detection and diagnosis, reducing risk, and preventing avoidable hospitalizations. The law also establishes Alzheimer's and Related Dementias Public Health Centers of Excellence, providing funding to state, local, and tribal public health departments, and increasing data analysis and timely reporting.
Now Congress must take the next step and fund the BOLD Infrastructure for Alzheimer’s Act at $20 million in Fiscal Year 2020. Learn more.
Care planning is essential to learning about medical and non-medical treatments, clinical trials, and locally available support services. Access to these resources results in a higher quality of life. Thankfully, following the advocacy efforts of AIM and the Alzheimer’s Association, Medicare now covers care planning for individuals with cognitive impairment. However, patients and medical providers are often not aware of this resource. In the first year the care planning reimbursement was available (2017), fewer than 1% of seniors living with Alzheimer’s received the care planning benefit.
AIM has worked with Congressional leaders to develop the bipartisan Improving HOPE for Alzheimer’s Act, legislation that would educate clinicians on Alzheimer’s and dementia care planning services available through Medicare. This will give clinicians the knowledge and tools to better help their patients and families living with dementia. Learn more.
The following bills are supported by AIM in the 116th Congress.
|Improving HOPE for Alzheimer's Act H.R. 1873 Letter of Support // S. 880 Letter of Support|
|Palliative Care and Hospice Education and Training Act (PCHETA) (H.R. 647) Letter of Support|
|Guardian Accountability Act Letter of Support|
|Study on Use of Antipsychotics in Non-nursing Homes (H.R.1955) Letter of Support|
|Independence at Home Act (S. 1202) Letter of Support|
|Change Act of 2019 House Letter of Support // Senate Letter of Support|