ALZHEIMER'S AND DEMENTIA CARE


AIM is leading the way to advance policies to improve access to quality health care services for individuals living with Alzheimer's disease. The health care system, as it exists today, all too often fails both those living with dementia and their caregivers. Because of AIM’s efforts with the Alzheimer’s Association, addressing the shortcomings through better policies is now front and center on Capitol Hill and in federal agencies.

Our Call to Congress


AIM has delivered important victories in care. But the agenda ahead remains immense.

Working with bipartisan Congressional champions AIM was instrumental in the development and introduction of the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act (S. 2076/H.R. 4256). The bill will create an Alzheimer's public health infrastructure across the country to implement effective Alzheimer's interventions,such as increasing early detection and diagnosis, reducing risk and preventing avoidable hospitalizations. The BOLD Infrastructure for Alzheimer's Act will also increase implementation of the Centers for Disease Control and Prevention's (CDC) Public Health Road Map nationwide by establishing Alzheimer's centers of excellence, providing cooperative agreements to public health departments, and increasing data collection, analysis and timely reporting. Learn more about the BOLD Infrastructure for Alzheimer's Act.

AIM continues to push to advance care priorities for our community with The Palliative Care and Hospice Education and Training Act (PCHETA) (S. 693/H.R. 1676). Palliative and hospice care – with a focus on managing and easing symptoms, reducing pain and stress, and increasing comfort – can improve both the quality of care and quality of life for those with advanced dementia. PCHETA would ensure an adequate, well-trained palliative care workforce through workforce training, education and awareness, and enhanced research.

AIM and the Alzheimer’s Association advocate for an ambitious policy agenda to improve care for our community. We need your support to drive Congress to act. Continue to ask your Members of Congress to enact policies that ensure individuals living with Alzheimer’s can rely on a health care system prepared to assist them as they contend with this disease.


Victory for Alzheimer's Care Planning

AIM, the Alzheimer’s Association, and our advocates led the way on the HOPE for Alzheimer’s Act to provide Medicare coverage for comprehensive care planning services for those living with Alzheimer’s disease and other cognitive impairments. Because of our efforts, congressional cosponsorship numbers soared.

In November 2016, the Centers for Medicare & Medicaid Services (CMS) finalized a decision to pay for cognitive and functional assessments and care planning. Beginning in 2017, for the first time, people living with Alzheimer's have access to care planning with a medical professional covered by Medicare. In August 2017, the Department of Defense announced that TRICARE will also cover care planning services for military service members and their dependents with cognitive impairment. Learn more at alz.org/careplanning.

Ask your Members of Congress to enact policies that ensure individuals living with Alzheimer’s and their caregivers have the care and support they need to best contend with this disease.