Protect Our Nation's Most Vulnerable

Unfortunately, people living with Alzheimer’s and other dementia are at heightened risk for elder abuse. Yet, often the professionals – including police, firefighters, emergency personnel and more – who deal with elder abuse have little knowledge about working with people who have dementia. To combat this shortfall, AIM is working with bipartisan Congressional leaders on the Promoting Alzheimer’s Awareness to Prevent Elder Abuse Act. Help us grow support for this critical bill.

Increase the Commitment to Alzheimer's Research

Alzheimer's is the most expensive disease in America, costing an estimated $290 billion in 2019. By mid-century, as the number of people living with the disease is set to nearly triple, the costs to our economy are projected to reach more than $1 trillion, with two-thirds of these costs paid by Medicare and Medicaid. Congress has recently provided additional funding for Alzheimer's research at the National Institutes of Health (NIH), yet a greater investment is still needed. AIM and our advocates continue to grow bipartisan support for increased research funding.

Fund the Alzheimer's Public Health Infrastructure

In December 2018, Congress overwhelmingly passed the BOLD Infrastructure for Alzheimer's Act. The law directs the Centers for Disease Control and Prevention (CDC) to strengthen the public health infrastructure across the country by implementing effective Alzheimer's interventions focused on public health issues such as increasing early detection and diagnosis, reducing risk, and preventing avoidable hospitalizations. The BOLD Infrastructure for Alzheimer's Act will accomplish this by establishing Alzheimer's and Related Dementias Public Health Centers of Excellence, providing funding to state, local, and tribal public health departments, and increasing data analysis and timely reporting. In December 2019, Congress took bipartisan action and allocated $10 million to fund the law.

Educate Providers on Palliative and Hospice Care

Nearly half of all people with Alzheimer's and other dementias are in hospice care at the time of their death. However, less than half of surveyed nursing homes have some sort of palliative care program. For people with advanced dementia, such team-based care — which focuses on managing and easing symptoms, reducing pain and stress, and increasing comfort — improves quality of life, controls costs, and enhances patient and family satisfaction. But, as the demand for such coordinated care grows with the aging population, more must be done to ensure an adequately trained workforce. The Palliative Care and Hospice Education and Training Act would increase palliative care and hospice training for health care professionals, launch a national campaign to inform patients and families about the benefits of palliative care, and enhance research on improving the delivery of palliative care.