Florida State Alzheimer’s Plan Overview

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In 2012, the Florida legislature passed HB 473, establishing the Purple Ribbon Task Force (PRTF) within the Department of Elder Affairs, consisting of 18 culturally diverse individuals appointed by the governor, the president of the Florida Senate, and the speaker of the Florida House of Representatives. The legislation required the PRTF to submit a report of its findings and date-specific recommendations in the form of an Alzheimer’s disease state plan. The Task Force published the Final Report and Recommendations, State Plan on Alzheimers Disease and Related Forms of Dementia (ADRD) in August 2013. Although the legislation terminates the task force with the submission of the state plan, the findings and recommendations provide a catalyst to mobilize a state response to this public health crisis and a guide to modernize state policies related to people living with dementia. In 2019, House Bill 449 (Chapter Law 2019-147), Section 430.501 F.S., was enacted, requiring an updated State Alzheimer’s Plan every three years with a separate annual report required. The bill also updated the membership of the state’s Alzheimer’s Disease Advisory Committee, which supports the State Plan development. An updated Alzheimer’s Disease State Plan was published in November 2020.

Florida 2025 Policy Priorities

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Establish a Statewide Alzheimer’s Public Awareness Campaign 

Nearly 580,000 Floridians are living with Alzheimer’s, but as many as half of them are not formally diagnosed. It is critical that residents across the state understand the importance of early detection and diagnosis. Early intervention can provide individuals living with dementia access to treatments to slow disease progression and more time to plan for the future, adopt lifestyle changes, participate in clinical trials, and live more fully with a higher quality of life for as long as possible. The Alzheimer’s Association is calling on state lawmakers to allocate $1 million for the establishment of a statewide public awareness campaign on Alzheimer’s and other dementia, with a particular focus on Floridians aged 60 and older and underrepresented populations who are disproportionately affected by the disease.

 

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Ensure Access to Services from the Alzheimer’s Association Brain Bus

The Brain Bus is a mobile and virtual outreach initiative that prioritizes diverse and underserved populations throughout Florida. This program provides information on healthy living for the brain and body, early detection and diagnosis, caregiver resources and care planning, as well as emergency preparedness. To continue serving all 67 Florida counties and the growing number of Floridians living with dementia, the Alzheimer’s Association is urging lawmakers to allocate $491,614 to continue funding the Brain Bus.

 

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Increase Respite Funding for Dementia Caregivers 

More than 840,000 caregivers in Florida provided 1.3 billion hours of unpaid care in 2024, often enabling their loved ones living with dementia to live in the community instead of moving into more costly residential long-term care. However, over half of the caregivers in Florida are living with chronic health conditions. Respite care provides necessary relief to family caregivers, allowing the caregiver to take care of personal medical issues, complete tasks outside of the home, or simply enjoy time off from the demands of caregiving. Currently, over 18,000 caregivers are on the waitlist for respite service in the state. The Alzheimer’s Association is calling on lawmakers to increase respite care funding to eliminate the waitlist.

 

Find My Chapter

Together, we’re making an impact. Find an Alzheimers Association chapter in your community for more ways to engage.

Contact Us

State Affairs Contact: Alex Anderson

Phone: 904.299.5698 

Email: [email protected]

579,900

people living with Alzheimer’s in Florida

840,000

Floridians are providing unpaid care

$2.7 Billion

Medicaid cost of caring for people living with Alzheimer’s (2020)

6,716

deaths from Alzheimer’s disease in 2021

15%

in hospice with a primary diagnosis of dementia

277.1%

increase of geriatricians in Florida needed to meet the demand in 2050