Illinois State Alzheimer’s Plan Overview
Illinois publishes an updated Alzheimer’s state plan every three years pursuant to the Alzheimer’s Disease Assistance Act (410 ILCS 405). The Act charged the Illinois Department of Public Health to create an Advisory Committee of Alzheimer’s disease researchers, professional caregivers, members of advocacy organizations, people living with Alzheimer’s and their families. In 2012, the Act was amended to drive the next iteration of the state plan toward dementia-capability. The state Alzheimer’s plan was updated in September 2020 and most recently in January 2023. In the newest state plan, recommendations are detailed for new policies to address the statewide response to Alzheimer’s and other dementia.
Illinois 2026 Policy Priorities
Expand Nondiscrimination Protections to Biomarker Data
With the historic Food and Drug Administration (FDA) approval of treatments that slow the progression of Alzheimer’s in the early stages, early detection and diagnosis is even more critical to ensure that individuals receive the most benefit at the earliest point possible. Biomarkers offer one of the most promising paths to improve dementia detection, diagnosis and treatment, and it is important that the results of these tests are only used by medical professionals and patients when appropriate. The Alzheimer’s Association is urging state policymakers to support legislation that expands the existing Genetic Information Privacy Act (GIPA) to include biomarker testing data to protect Illinois residents from employment and insurance discrimination.
Improve Quality of Care in the Home Services Program
A cornerstone of providing quality care is ensuring the workforce is equipped with dementia-specific knowledge. While Illinois has successfully implemented training requirements for many state employees, caseworkers and providers in the Home Services Program — which serves residents under age 60 — do not currently have ongoing dementia training requirements. As the number of people living with the disease increases, it is critical that all state-funded care providers are prepared to provide effective support. The Alzheimer’s Association is urging state lawmakers to ensure dementia training standards for caseworkers and providers within the Home Services Program.
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Contact Us
State Affairs Contact: Jennifer Belkov
Phone: 847.779.6957
Email: jbelkov@alz.org
250,600
people living with Alzheimer’s in Illinois
316,000
Illinoisans are providing unpaid care
$2.4 Billion
Medicaid cost of caring for people living with Alzheimer’s (2025)
4,111
deaths from Alzheimer’s disease in 2022
18%
in hospice with a primary diagnosis of dementia
27.7%
increase of geriatricians in Illinois needed to meet the demand in 2050
Resources to Drive Change in Illinois
The following resources developed by AIM and the Alzheimer’s Association will help you learn more about the issues impacting people living with Alzheimer’s and their caregivers, how Illinois policymakers are addressing these gaps, and how you can help drive change.