Illinois State Alzheimer’s Plan Overview

AA Family Looking at Computer

Illinois publishes an updated Alzheimer’s state plan every three years pursuant to the Alzheimer’s Disease Assistance Act (410 ILCS 405). The Act charged the Illinois Department of Public Health to create an Advisory Committee of Alzheimer’s disease researchers, professional caregivers, members of advocacy organizations, people living with Alzheimer’s and their families. In 2012, the Act was amended to drive the next iteration of the state plan toward dementia-capability. The latest update, the Alzheimer’s Disease Illinois State Plan: 2020-2023 Report and Recommendations, was completed in September 2020.

Illinois 2022 Policy Priorities

Home Health Aide with Patient and Family Member

Improve Access to Long-Term Care

For people living with Alzheimer’s and other dementia and their families, remaining at home for as long as possible is preferred. The Alzheimer’s Association, in collaboration with partner organizations, is calling on lawmakers to support legislation that would decouple functional eligibility standards between institutional and home care, helping to keep residents in the most appropriate setting based on their level of need. This bill will ensure residents can access appropriate long-term care services commensurate with their needs, with an emphasis on increasing access to home- and community-based services.


Empower First Responders with Dementia Training

First responders are critical to the health and safety of people living with Alzheimer’s and other dementia. They frequently interact with individuals living with dementia in a variety of settings and are among the first to observe instances of abuse and neglect. Without proper training on how to recognize the signs of dementia and how to effectively communicate with people living with dementia, situations may escalate quickly with potentially dangerous consequences. The Alzheimer’s Association is calling on legislators to support legislation on training for emergency medical services workers to educate these professionals on understanding specific behavior symptoms, effective communication strategies, protocols for contacting caregivers and available local resources.

An image of a Woman and Health Aide

Maintain Dementia-Specific Training Standards for Direct Care Workers

In 2019, dementia training requirements were enacted in Illinois for direct-service workers, including home health agencies, memory care units, and all service providers who advertise services targeted toward people living with Alzheimer’s or dementia. These training requirements are helping to ensure that direct-service staff is providing the highest quality care to people living with a form of dementia. However, the training requirements are set to expire without legislative action. That’s why the Alzheimer’s Association is urging legislators to pass an extension of dementia training requirements for direct-service workers.

Nurse with patients

Ensure Dementia Competency for Home and Community-Based Care

Many of our most vulnerable residents living with dementia receive services through the Community Care Program (CCP) at the Department on Aging. These CCP providers currently receive some dementia training. However, to ensure they can deliver quality care to the residents they serve living with dementia, the Alzheimer’s Association is calling on legislators to support forthcoming legislation that will ensure all individuals serving people through the CCP program receive regular dementia-specific training.

Find My Chapter

Together, we’re making an impact. Find an Alzheimers Association chapter in your community for more ways to engage.

Contact Us

State Affairs Contact: Jennifer Belkov

Phone: 847.779.6957

Email: [email protected]


people living with Alzheimer’s in Illinois


Illinoisans are providing unpaid care

$1.8 Billion

Medicaid cost of caring for people living with Alzheimer’s (2020)

483 Million

increase in Alzheimer’s deaths since 2000


in hospice with a primary diagnosis of dementia


increase of geriatricians in Illinois needed to meet the demand in 2050