Missouri State Alzheimer’s Plan Overview 

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In 2009, the Missouri General Assembly established the Missouri Alzheimers State Plan Task Force through passage of HB 272. Responsible for assessing the challenges posed by Alzheimers disease within the state, the Task Force included representatives from state agencies, health care providers, and community organizations as well as caregivers, state legislators, an individual living with Alzheimers, and the lieutenant governor. After collecting public input regarding community frustrations, concerns, and advice on dealing with this disease, the Task Force presented the Missouri Alzheimers State Plan, published in November 2010.

Missouri 2022 Policy Priorities

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Support Dementia Caregivers by Protecting the Alzheimers Grants for Respite

Over 190,000 Missourians are providing unpaid care to loved ones living with Alzheimer’s or other dementia thus enabling a large portion of the 120,000 people living with dementia in Missouri to live in the community, instead of moving into more costly residential long-term care. In cases where finances are tight, Missouri’s state-funded Alzheimer’s Respite Care Program steps in with limited but critical support. The program funds can help provide occasional adult day care services or a personal care aide in the home a few times a month allowing the family caregiver to take care of their personal medical issues, complete tasks outside of the home, or simply enjoy time off from the demands of caregiving. To serve the growing number of family caregivers, it is critical that legislators maintain funding of $450,000 in the Department of Health and Senior Services to continue respite assistance for families caring for a loved one living with Alzheimers at home.

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Maintain Funding for the Structured Family Caregiver Waiver

The Structured Family Caregiver Program allows up to 300 Missouri HealthNet (Medicaid) beneficiaries, including those living with Alzheimer’s or other dementia, to live in their choice of home setting with the caregiver of their choice. This increases access to home- and community- based services and supports family caregivers of people living with dementia by providing reimbursement for daily caregiving tasks. This waiver was approved by the Centers for Medicare & Medicaid Services (CMS) in February of 2020, and the Alzheimer’s Association secured $4.3 million in funding for the program. It is critical that legislators maintain this funding in the Department of Health and Senior Services budget for this program.

Find My Chapter

Together, we’re making an impact. Find an Alzheimer’s Association chapter in your community for more ways to engage.

Contact Us

State Affairs Contact: Jerry Dowell

Phone: 573.489.4263 

Email: [email protected]

120,000

people living with Alzheimer’s in Missouri

194,000

Missourians are providing unpaid care

$973 Million

Medicaid cost of caring for people living with Alzheimer’s (2020)

292 Million

increase in Alzheimer’s deaths since 2000

17%

in hospice with a primary diagnosis of dementia

211.0%

increase of geriatricians in Missouri needed to meet the demand in 2050